UK Parliamentary debate today - Thursday 24th January 2019

ETA:
hmm... seems the whole post from MP Carol Monaghan wasn't included.
It reads:

Carol Monaghan MP leading the House of Commons debate on ME treatment️ WATCH: My speech to lead the House of Commons debate on ME treatment

I thank all MPs who sponsored and spoke during the debate, and the the ME community for their support and lobbying in this and previous debates.

We have made a number of asks – the UK government need to take them seriously.

 

Yes. This makes sense.

 

This post has been bothering me. In particular, the sentence "It was only when the girl's parents sought the intervention of the secretary of state that the girl was allowed home and removed from the at risk register".

The secretary of state is apparently fully aware of improper decision making and treatment in one case. He cannot reasonably assume that it was an isolated case. So what enquiries has he made, or put in place, to ascertain the full extent of the problem and its precise nature, and to initiate remedial action? If none, why not?

 

https://twitter.com/user/status/1088814288800808960

 

From an email sent out by MEAction

 

https://twitter.com/user/status/1090294535685636096

 

Wonder who the 7.5 people who voted Yes are?

 

Can anybody help out with this?
https://twitter.com/user/status/1091640139749699584

 

try (without Quotes) "from:D_Blanchflower ME" in the Twitter search box. Tweets can be saved by accessing and then saving the URL in the address bar for individual tweets.

 

Umm, I found blanchflower's tweets this way but I haven't a clue how to get them to post here.

 

The Parliamentary debate was mentioned in a critical news article from Norway about a mindfulness/CBT-study claiming to improve 80% of ME patients.
Short recap of article and link to google translation here

 

Get the URLs, select the 'Media' (film strip) button and put them in the box that comes up.

 

Just pasting the links in the text editor works as well, it automatically adds the wrapping tags.

 

Thank you both.

 

Thank you to everyone with ME and their carers in supporting my Member of Parliament, Carol Monaghan MP and her 24th January 2019 parliamentary debate and the previous two debates in 2018. Thank you to everyone including on S4ME for contacting and asking your MP’s to attend.

Throughout the period of these three debates, severe patients with ME who are bed-ridden/housebound/tube-fed in mind were in mind throughout the whole of last year.

Thank you also to everyone who has contributed their little bit of advocacy over the decades and those who could not contribute to these parliamentary debates and actions perhaps due to their health but advocated in other ways over the years which all helped in these three parliamentary debates.

I have had to take some time out recently due to the effect on my own ill-health caused by working on this continually for over a year.

There were foreseen and unforeseen issues during this period. It has been brought to my attention and been made aware of some misinformation but was unable to comment throughout the parliamentary debates and a decision was taken to focus fully and entirely on the parliamentary debates to ensure maximum success for the ME community. In due course I will be able to communicate more and provide a debrief to the ME community.

 

I'm just desperately praying that Carol Monaghan will get re elected

 

I too am disappointed to see Nicky Morgan is standing down. She has been very supportive of pwme in the Parliamentary efforts of the last year or two. She has also responded to letters written to her by non constituents about ME including from US if I remember correctly.

ETA: ‘about ME’ added in last sentence