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UK: Survey: The Brain Charity: Have your say on neurological delays and misdiagnoses

Discussion in 'Advocacy Action Alerts' started by Andy, Oct 20, 2022.

  1. Andy

    Andy Committee Member

    Messages:
    21,912
    Location:
    Hampshire, UK
    "Our survey will help us understand how to improve the diagnosis issues people with neurological conditions face

    We know that for far too many people with neurological conditions, getting a diagnosis can be a lengthy and deeply frustrating process.

    That’s not good enough, and we’re determined to change it.

    To do that, The Brain Charity is launching a brand new survey, to help us get a better understanding of the difficulties people are facing and to try and understand how and where improvements can be made.

    Who can take the survey?
    The Brain Charity’s new survey is designed for people with neurological conditions and their family members.

    If you or a loved one has been through a diagnosis or has experienced a neurological condition, we want to hear from you.

    How can I take the survey?
    Click https://bit.ly/TBCSurvey22 "

    More detail at https://www.thebraincharity.org.uk/neurological-condition-delay-misdiagnosis/
     
  2. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,582
    Location:
    UK
    hm; not keen on their CFS page (I searched using myalgic encephalomyelitis)
    Chronic fatigue syndrome - The Brain Charity
     
  3. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,582
    Location:
    UK
    this has been updated.........much,much better
    https://www.thebraincharity.org.uk/condition/chronic-fatigue-syndrome/
     

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