United Kingdom: Action for ME's PRIME project - research infrastructure

[V.R.T.]

Have the members of PRIME made any efforts to recruit BTN geneticists? There are some really interesting clues in the BTN thread, giving plausible leads in a few different directions and I think bringing in experts in the BTN genes and the cells/molecules etc they interact with should be a major priority for the field.

 

[Andy]

Not as a specific PRIME activity. Which isn't to say that it definitely hasn't happened as I won't know what members of the group get up to in their own time.

 

[OrganicChilli]

Register for the 4th PRIME webinar: The Neurology of ME/CFS

Register for the 4th PRIME webinar about neurology in ME/CFS. The webinar is part of the PRIME research project and is online.

www.actionforme.org.uk

https://www.actionforme.org.uk/wp-content/uploads/2026/09/PRIME-Webinar-4-Programme.pdf

Date: Wednesday 28th October, 2026

Time: 2pm-5pm GMT

Location: online via Zoom

We are pleased to announce that registrations for the 4th webinar in the PRIME project series are now open!

The 4th webinar, The Neurology of ME/CFS, will take place on:

Date: Wednesday 28th October, 2026

Time: 2pm-5pm GMT

Location: online via Zoom

Register here!

Joint international researchers for an online workshop that explores neurology in ME/CFS. The workshop will cover why neurology has become such an important area of research in ME/CFS, how findings are shaping future studies and their potential to improve diagnosis, identify therapeutic targets, and ultimately lead to better outcomes for people living with ME/CFS.

These online workshops are open to researchers, healthcare professionals, people with ME/CFS, and the public, and you’ll gain valuable insights into one of the most promising areas of ME/CFS research.

Speakers include:

· James Cox, University College London

· Felipe Correra de Silva – Amsterdam UMC

· Keyla Santos Guedes de Sá – Yale School of Medicine

· Beata Godlewska – University of Oxford

· Jarred Younger – University of Alabama at Birmingham

 

[Jonathan Edwards]

@Andy,
Is there away to get on to tthe direct mailing list for the PRIME events? I currently rely on prompts from S4ME members.

 

[Andy]

@Andy,
Is there away to get on to tthe direct mailing list for the PRIME events? I currently rely on prompts from S4ME members.

There is no mailing list. Currently, all announcements are made through a combination of social media posts and being featured on AfME's website.

 

[Jonathan Edwards]

There is no mailing list. Currently, all announcements are made through a combination of social media posts and being featured on AfME's website.

that seems a pity. I never use social media. I have emailed new UCL neurology contacts about the next one, including Mike Zandi, but I think a number of interested people may miss hearing about them.

 

[hotblack]

Some really interesting looking presentations there! Looking forward to the one on CA10 by @James Cox particular of course
@Andy I assume this will be on YouTube sometime after the event like previous webinars for those not able to attend or follow live?

 

[Andy]

@Andy I assume this will be on YouTube sometime after the event like previous webinars for those not able to attend or follow live?

Yes, I'm not aware of any reason why it shouldn't be.