United Kingdom: Long Covid Kids

[rvallee]

Edit: another one



Did the BBC ever cover the Millions Missing protests? Not mad about this coverage, but the only difference here is perception, this is essentially the same issue.

 

[Trish]

I've had a quick look through some of the information on Long Covid Kids. They look really well organised and producing some good materials and support systems.

 

[Denise]

I've had a quick look through some of the information on Long Covid Kids. They look really well organised and producing some good materials and support systems.

I know they have something about PEM on their site but at least until recently they disavowed ME as a follow-on to some LongCOVID. Has that stance changed?

 

[Hutan]

https://www.longcovidkids.org

Our Purpose
We believe all children should be able to thrive and look forward to a positive future.
That is why we represent and support children and young people living with Long Covid and related illnesses and the parents and caregivers that look after them.

Interesting to see the 'and related illnesses' there in the Purpose.

One of the people involved has ME/CFS and has a child with ME/CFS.

Sarah O Connell
Lead LCK Representative for Ireland

Sarah and her daughter suffer from post viral ME/Chronic Fatigue Syndrome. She has a BA in Psychology and MA in Psychoanalytic Theory. Sarah has seen first hand the devastation caused by post viral illness.
She is passionate about fighting for proper recognition and services for those with post viral illnesses. She is eager to fight for adequate care for the huge number of families effected by Long Covid.