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United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

Discussion in 'Regional news' started by Sly Saint, Sep 8, 2022.

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  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,582
    Location:
    UK
    See also News from Scotland
    _________________

    Moved from the News from the MEA thread.

    not news from MEA as such; but anyone know about this person https://www.wandabelisle.com/
    according to her website "
    FEATURED on upload_2022-9-8_11-17-24.png
     
    Last edited by a moderator: Dec 1, 2022
    Sly Saint, Sep 8, 2022
    #1
    Ash, bobbler, DokaGirl and 1 other person like this.
  2. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,582
    Location:
    UK
    Merged thread

    New M.E Support Group @ Dunston, Gateshead

    Contact Person
    Pauline Dillon

    Email
    admin@dunstondrop-in.org.uk
    Organisation Address
    Dunston Drop-In CIO
    Unit 2,
    Clockmill Road
    Dunston
    NE8 2QX
    United Kingdom

    (I don't know any more about this group)
     
    Last edited by a moderator: Sep 8, 2022
    Sly Saint, Sep 8, 2022
    #2
    DokaGirl, Peter Trewhitt, MEMarge and 2 others like this.
  3. Trish

    Trish Moderator Staff Member

    Messages:
    52,225
    Location:
    UK
    Last edited: Sep 8, 2022
    Trish, Sep 8, 2022
    #3
    bobbler, DokaGirl, MEMarge and 1 other person like this.
  4. BrightCandle

    BrightCandle Senior Member (Voting Rights)

    Messages:
    338
    The electrolyte drink sounds quite interesting, D-ribose often gets thrown in (does nothing for me) but 5g of L-Glutamine is quite a bit and this is twice a day, that will have an impact. Since the ME/CFS body appears to run on this protein for energy I can imagine that might very well help.

    Another individual set back and hurt by GET, its a sad repeated story at this point.
     
    BrightCandle, Sep 8, 2022
    #4
    bobbler, DokaGirl, MEMarge and 4 others like this.
  5. Trish

    Trish Moderator Staff Member

    Messages:
    52,225
    Location:
    UK
    Do you have a link to the sources of this?
     
    Trish, Sep 8, 2022
    #5
    DokaGirl and Peter Trewhitt like this.
  6. TigerLilea

    TigerLilea Senior Member (Voting Rights)

    Messages:
    1,818
    Location:
    Metro Vancouver, BC - Canada
    Why, if someone has truly had ME, would they not be offering their information for free for everyone to read? Most people who have found something that helps with their particular medical condition usually are shouting it from the rooftop trying to get everyone to listen to them. They aren't writing books about it and charging you for the information.
     
    TigerLilea, Sep 8, 2022
    #6
    Ash, TiredSam, Sly Saint and 4 others like this.
  7. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    13,259
    Location:
    UK West Midlands
    I think there’s a small subset who are writing books or doing “training courses” and charging.
     
    NelliePledge, Sep 9, 2022
    #7
    Lou B Lou, Trish, DokaGirl and 1 other person like this.
  8. TiredSam

    TiredSam Committee Member

    Messages:
    10,496
    Location:
    Germany
    Not too keen on the stock image of a model in bed:
    https://www.istockphoto.com/de/foto/foto-einer-frau-die-aufwacht-gm1257805561-368739078

    Although I must grudgingly admit I liked her video on toxic positivity:

    https://www.instagram.com/reel/Ch2b5GRJ0ST/embed/?autoplay=1
     
    TiredSam, Sep 11, 2022
    #8
    bobbler, Peter Trewhitt and Trish like this.
  9. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    13,259
    Location:
    UK West Midlands
    That image vibe is post coital rather than post viral
     
    NelliePledge, Sep 11, 2022
    #9
    Ash, SNT Gatchaman, oldtimer and 5 others like this.
  10. Kitty

    Kitty Senior Member (Voting Rights)

    Messages:
    5,350
    Location:
    UK
    :laugh::laugh:
     
    Kitty, Sep 11, 2022
    #10
    AknaMontes, MEMarge, oldtimer and 1 other person like this.
  11. bobbler

    bobbler Senior Member (Voting Rights)

    Messages:
    2,458
    bobbler, Sep 12, 2022
    #11
    MEMarge, TiredSam and Peter Trewhitt like this.
  12. Suffolkres

    Suffolkres Senior Member (Voting Rights)

    Messages:
    1,522
    Moved post

    Today Woman's Hour Radio 4


    10.30ish Arrogance in doctors and mother blame……Cultural issues….

    Gina CYP Consultant comment… 'Arrogance leads to death…..'


    https://www.bbc.co.uk/programmes/p0d514ry


    Today Woman's Hour Radio 4Exclusive: My 13-year-old daughter’s death was preventable. Here’s why I’m speaking out
    Merope Mills describes her anger at her daughter Martha's preventable death in hospital.

    loss of "relationship medicine"... patient safety....at risk with loss of continuity of care...
     
    Last edited by a moderator: Oct 18, 2022
    Suffolkres, Oct 18, 2022
    #12
    Ash, RedFox and Peter Trewhitt like this.
  13. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,582
    Location:
    UK
    Merged thread

    WAMES WordPress Volunteer for the Welsh Association of ME and CFS Support

    https://ceredigion.volunteering-wales.net/volunteers/opportunity/10174346?searchqs=
     
    Last edited by a moderator: Dec 1, 2022
    Sly Saint, Nov 3, 2022
    #13
    It's M.E. Linda, Peter Trewhitt and Hutan like this.
  14. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,582
    Location:
    UK
    Merged thread

    Northern Ireland

    Michael Watt: Review finds 'significant failures' in patient treatment

    https://www.bbc.co.uk/news/uk-northern-ireland-63784995
     
    Last edited by a moderator: Dec 1, 2022
    Sly Saint, Nov 29, 2022
    #14
    Peter Trewhitt, obeat and Trish like this.
  15. CRG

    CRG Senior Member (Voting Rights)

    Messages:
    1,857
    Location:
    UK
    Merged thread

    Sajid Javid to stand down as MP at next general election

    Wasn't sure where to put this - but Sajid Javid will cease to be an advocate for ME/CFS in Parliament after the next election - date unspecified but has to be within the next two years.

    https://inews.co.uk/news/politics/sajid-javid-stand-down-next-general-election-2006219

    "Former Cabinet minister Sajid Javid has announced he will stand down as an MP at the next General Election.

    Mr Javid, who held six Cabinet posts under three prime ministers including Chancellor, Home Secretary and Health Secretary, announced on Twitter: “After much reflection I have decided that I will not be standing again at the next General Election.

    “Serving as the Member of Parliament for Bromsgrove remains an incredible privilege, and I will continue to support the Government and the causes I believe in.”
     
    Last edited by a moderator: Dec 2, 2022
    CRG, Dec 2, 2022
    #15
    RedFox, Dolphin, Peter Trewhitt and 3 others like this.
  16. Shadrach Loom

    Shadrach Loom Senior Member (Voting Rights)

    Messages:
    1,052
    Location:
    London, UK
    We have several supporters in the Lords, as well, who may be replaced with democratically elected scrutinisers of legislation under an incoming Labour government. Plus ca change!
     
    Shadrach Loom, Dec 2, 2022
    #16
    RedFox, Dolphin, Peter Trewhitt and 1 other person like this.
  17. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,582
    Location:
    UK
    Funding boost to open long COVID services up to people with long term conditions

    Health Minister Eluned Morgan has today announced increased funding to widen access to Wales’ long-Covid services, including for people experiencing other long-term conditions.

    https://www.gov.wales/funding-boost-open-long-covid-services-people-long-term-conditions
     
    Sly Saint, Mar 14, 2023
    #17
    RedFox, Peter Trewhitt and Trish like this.
  18. Peter Trewhitt

    Peter Trewhitt Senior Member (Voting Rights)

    Messages:
    3,666
    The MEA shared this Parliamentary petition on their Facebook page recently, it may have been shared elsewhere, so sorry if this is a duplicate

    Urgent funding for research into Long Covid and ME/CFS treatments and cures

    “Around a quarter of a million people are suffering with ME/CFS in the UK and over 2 million with long Covid. Many of these people are severely disabled. There are no cures of specific medicines for these conditions. Urgent funding is needed for research to find effective treatments and cures.”
    https://petition.parliament.uk/petitions/630551

    Can only be shared by UK citizens and/or UK residents.

    For discussion of this, go to the petition thread:
    Petition: UK Funding for ME & Long Covid research into treatment
     
    Last edited by a moderator: Mar 14, 2023
    Peter Trewhitt, Mar 14, 2023
    #18
    Hutan, SNT Gatchaman, Dolphin and 1 other person like this.
  19. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    5,083
    Dolphin, Jun 24, 2023
    #19
    Peter Trewhitt and Trish like this.
  20. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
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    Location:
    UK
    Merged thread

    Article in several papers UK: Health expert lists six reasons you might feel tired all the time

    also
    Doctor shares six little-known reasons you may feel tired 'all the time'


    so far I've found 2

    https://www.nottinghampost.com/news/health/health-expert-lists-six-medical-8551059

    https://www.dailyrecord.co.uk/news/health/doctor-shares-six-little-known-30321593

    only local but.......
     
    Last edited by a moderator: Jun 26, 2023
    Sly Saint, Jun 26, 2023
    #20
    RedFox, DokaGirl, Dolphin and 1 other person like this.
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