United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

Chandelier said:
Long Covid rehab service could end due to falling number of sufferers
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Our local LC clinic was defunded and closed, and a new assessment service was set up, but didn't tell anyone. If no one knows it exists, they don't ask for referrals. So now ours is closing due to insufficient referrals. Which is not the same as insufficient patients.

There still appears to be a psychology service though, which I understand may be focusing on Acceptance and Commitment Therapy .
 
(I’m not sure where the original discussion on this is)
MEA Facebook:

Sharing for information only: The NHS has launched a new version of their online module, Supporting people with severe ME/CFS.

"This has been created based on feedback from learners, DHSC and internally at NHS with consideration to patient safety and how we can best help improve patient outcomes"

This new version, as with the original version, continues to be accessible to healthcare professionals only. Dr Charles Shepherd, MEA Hon. Medical Adviser, is going to check with the DHSC as to whether this new version of the e-learning module on severe ME/CFS can be made available to anyone who wants to see it.

Catalogue

learninghub.nhs.uk learninghub.nhs.uk

#pwME #MECFS #MyalgicE #SevereME #NHS
 
Zack Polanski had Amir Khan on his Bold politics interview talking about health and there is a section about Long Covid with ME/CFS and Fibromylgia mentioned as part of this (link goes to the starting time of that part). The interview also covers the lack of funding and block with decision makers at the moment. Its about 3 -4 minutes long before they move on. Its not overly green political as a conversation and the interview is quite interesting on the funding challenges of the NHS and related services and other issues.

 
Long Covid mentioned as part of the Chair's statement on this module 3 report (impact on healthcare). Criticism around the lack of research funding, diagnosis and health care provision and the dismissal of patients but IMO its not strong enough. Link below goes to start of Long Covid section.

There is also some criticism of Infection Prevention and Control but not what that criticism is, it should be they think Covid is droplet based rather than airborne and the use of surgical masks isn't appropriate but I guess we will have to dig into the report to see if that came across or not.



The report

The report does talk a lot to aerosol transmission, the wrong IPC guidance and consequences of increased risk for staff and patients. It does however frame it as a historical thing, whereas we know its still a problem in the NHS today. Its two huge chapters dedicated to it so its a long read and not one I recommend as its wishy washy and just not strong enough.

 
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Statement from "Supporting Healthcare Heroes UK" on the COVID inquiry Module 3 report, which, if I understood correctly, especially laid bare how the advice against airborne transmission was a political decision, not a credible, scientific one.
shh-uk.org

Failure To Update IPC Exposed Staff To Preventable Harm

Covid Inquiry highlights failure to update IPC guidance in line with science, exposing healthcare workers to preventable harm and Long Covid.
shh-uk.org shh-uk.org
Thousands of UK healthcare workers are now living with Long Covid, experiencing symptoms such as fatigue, cognitive impairment, and breathlessness. Many have reduced hours, changed roles, or left employment entirely.

Reinfection remains a significant concern in healthcare settings where airborne infection prevention is still inadequate.

SHH-UK warns that without action, the same failures identified by the Inquiry will continue to harm staff and patients.
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Although since every single country followed along, at all levels, all knowing it was false, it's hard to see anything come of this. Everyone working in those systems, and pretty much the whole industry, bears some complicity, which makes them all more likely to not bother doing anything about it.
 
From ME Action on Facebook

The DHSC has said it will “pause” on commissioning Severe/VerySevere Services until at least April 2027

Reasons include NHS England closing and ICB changes.

ME Action are asking people to contact their MP by midday 26 March (tomorrow) to table a health question asking “why has the Very Severe ME service planning stopped?”
 

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