United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

For anyone who took part and can't read lengthy articles: it seems no sale was made, the Chinese government removed it very quickly on request from Britain.

The anonymised data was obtained legitimately from the Biobank by academic centres, which then listed it for sale. Which is...disappointing.
 
The North Wales ME/CFS service is running a webinar tomorrow - forum thread with details here

This is an opportunity to help nudge the service in a good direction, I hope some members will be able to participate.

There will be webinars from other Welsh regions later - WAMES, the Welsh patient charity has more information.
 
I haven't heard of her either, but the "recovering from ME/CFS" label on her site is a bit of a red flag for me. Usually, when someone pivots from being a patient to a "Registered Health Coach" for this specific condition, there's a sales pitch coming. It’s better to stick to established patient advocacy groups.
 
FicaR94 said:
I haven't heard of her either, but the "recovering from ME/CFS" label on her site is a bit of a red flag for me. Usually, when someone pivots from being a patient to a "Registered Health Coach" for this specific condition, there's a sales pitch coming. It’s better to stick to established patient advocacy groups.
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I've lost track: who are you referring to?
 
Link : https://www.mirror.co.uk/news/uk-news/woman-24-dies-hospital-after-37124440

Woman, 24, dies in hospital after paramedic 'thought she was overreacting'​

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Clarissa Street, 24, suffered a pulmonary embolism and spent more than an hour in a hospital corridor where a nurse gave her an oxygen mask that wasn't connected to anything, an inquest heard​

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I had never heard of anyone being given an oxygen mask without attaching it to anything, and I wonder how often it happens. It isn't clear to me if it was intentional or accidental. It reminds me of doctors giving patients placebos when they are in pain.
 
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Arnie Pye said:
Link : https://www.mirror.co.uk/news/uk-news/woman-24-dies-hospital-after-37124440


https://www.mirror.co.uk/news/uk-news/woman-24-dies-hospital-after-37124440


I had never heard of anyone being given an oxygen mask without attaching it to anything, and I wonder how often it happens. It isn't clear to me if it was intentional or accidental. It reminds me of doctors giving patients placebos when they are in pain.
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I saw a reddit thread about this and a doctor on there was saying it is drummed into them over and over in training that young woman hyperventilating and anxious = panic attack.

It's not much better if you present like that at a hospital as a man from my experience.

The 'everythings stress and anxiety' medical culture is killing people.
 
www.bbc.co.uk

Devon surfing champion on burnout: 'My body just shut down'

Eight-time English surfing champion Lucy Campbell looks forward after burnout left her bed-bound.
www.bbc.co.uk www.bbc.co.uk

"I was in bed for I think about six weeks I couldn't surf I was just completely exhausted."

Lucy Campbell talks about how the sport she fell in love with as a child almost broke her.

Campbell, 31, is one of the most successful surfers England has produced, with eight national titles to her name.

But after a severe spell of burnout that left her exhausted, isolated and unable to train, she is setting a new course, on her own terms...

...When results dipped, she pushed harder. Instead, her body shut down....

"I was in bed for I think about six weeks, I couldn't surf...

"My heart would be racing even when I was lying in bed," she said. "It felt like I had just been out for a run. I could not calm it down at all. My nervous system was in complete chaos."..

...Doctors later suggested she may have been suffering from Relative Energy Deficiency in Sport, known as RED-S when sports people restrict their diet, burnout or another form of adrenal fatigue, but there was no definitive test...

Burnout is recognised by the World Health Organization as an occupational phenomenon and is classed as a syndrome rather than a medical condition.

It is a state of physical, mental and emotional exhaustion caused by long-term stress and prolonged pressure that leaves people feeling detached, demotivated and hopeless.
 
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