United Kingdom: Sussex & Kent ME/CFS Society News

The Society is a member of BACME and currently has five medical advisors
  • Dr Alan Stewart - medical practitioner to the NHS Sussex CFS/ME service
  • Dr Alastair Miller - former Consultant Physician in the Tropical & Infectious Disease Unit at the Royal Liverpool University Hospital, now practices acute medicine in Carlisle part time and part time Deputy Medical Director at the Joint Royal College of Physicians Training Board
  • Dr Jessica Eccles - recently completed PhD in the relationship between joint hypermobility, autonomic dysfunction and psychiatric symptoms and is now an NIHR Academic Clinical Lecturer. Also holds honorary clinical contracts with both Sussex Partnership NHS Foundation Trust and Brighton and Sussex University Hospitals NHS Trust
  • Prof Neil Harrison - Clinical Professor in Neuroimaging at the Cardiff University Brain Research Imaging Centre, research investigates how inflammation in the body acts on the brain to impair mood, motivation and cognition and how it contributes to illnesses like ME/CFS
  • Professor Leslie J Findley - retired neurologist and former Clinical Director of a referral centre for patients with complex fatigue syndromes of all types (London)
Though the medical advisors now all have current or at least historic links with Kent and/or Sussex, the Society still has significantly more medical advisors than the other ME/CFS charities, even national ones. Are any other of the other ME/CFS charities members of BACME? The Society continues an outlier of the British charities and local groups in terms of its relationship to BSP understanding of our condition.
 
Dolphin said:
The medics who advise the Sussex & Kent ME/CFS Society are some of the
most qualified and experienced in the field who have assessed and
managed those affected by ME/CFS for many years.
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Esther Crawley was also one of their medical advisers for years
T

Thread 'Dr Alastair Miller praises the Sussex & Kent ME/CFS Society in Sussex Argus'

Source: Sussex Argus
Date: July 5, 2018
URL: http://www.theargus.co.uk

[Letters]

Thriving ME Society
-------------------

I think Sussex ME Society has done a fantastic job to survive and flourish for 30 years in a climate that is often seen as hostile to ME patients, carers and clinicians. It has always been an organisation with a truly open mind that is not afraid to champion unpopular causes and speak common sense in a world where common sense and pragmatism can be sadly lacking. They have supported and made a difference to many many individuals with ME and should be justifiably...
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Some interviews/articles by Sussex ME/CFS Society medical Advisor Dr Alastair Miller had been very recently removed from the old Sussex ME/CFS Society 'Latest News' section of their site.

Those interviews/articles spelled out that Alastair Miller rejects the new 2021 NICE guideline, that he still supports CBT/GET and thinks the thing we need most is 'hope'.
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Lou B Lou said:
Some interviews/articles by Sussex ME/CFS Society medical Advisor Dr Alastair Miller had been very recently removed from the the old Sussex ME/CFS Society 'Latest News' section of their site.

Those interviews/articles spelled out that Alastair Miller rejects the new 2021 NICE guideline, that he still supports CBT/GET and thinks the thing we need most is 'hope'.
.
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I have not examined in detail the new website, but just glancing through when I was looking for the current medical advisors it seemed much better than the old site. Perhaps they are trying to improve their wider public image?
 
Peter T said:
I have not examined in detail the new website, but just glancing through when I was looking for the current medical advisors it seemed much better than the old site. Perhaps they are trying to improve their wider public image?
Click to expand...

When I looked for the interviews/articles by Alastair Miller on the old Sussex ME/CFS site and found they had recently been removed - my impression was that the Society was trying to hide the fact that their Medical Advisor Miller was an original Founder of BACME, rejects the 2021 NICE Guideline recommendations on CBT/GET, continues to champion CBT/GET, and is a leader and spokesperson in opposing the 2021 NICE Guideline. And trying to hide the evidence of the above from their Society members.
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there's also this thread
T

Thread '(Not a recommendation) Alastair Miller on CFS'

From: Dr. Marc-Alexander Fluks

Sent: Thursday 28 December 2017 09:45
To: LOCALME <localme@yahoogroups.com>; MEACTIONUK <meactionuk@yahoogroups.com>; MECHAT-L <mechat-l@listserv.icors.org>; CFS-L <cfs-l@listserv.icors.org>; Colin Barton <colin.sussexme@btinternet.com>
Subject: Column: Alastair Miller




Source: Alastair Miller
Date: December 22, 2017
Author: Alastair Miller

I am a NHS consultant physician in Infectious Disease and General Internal Medicine who has been involved in the NHS evidence based management of CFS since my training as a registrar in the late...
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