UniteToFight2024 Long Covid and ME/CFS conference, 15th and 16th May 2024

So tired of ‘fighting’.

 

The conference now has their own webpage: https://unitetofight2024.world/.

The homepage reads "Community-driven. Crowd-funded. The first and biggest community-driven ME/CFS and Long COVID conference"

"OUR VISION

We're building a space that's inclusive and accessible
We envision a world free of Long Covid & ME/CFS stigmatization, where every individual can thrive. Our mission is to create an inclusive, interactive space to address unmet needs and drive societal change. As an international, community-driven platform, we unite passionate voices through digital and tangible means, supported by crowdfunding. Our goal is to debunk myths, foster research, and transform public perception of ME/CFS and Long Covid, making recognition and understanding a collective endeavor."

Registration is open to anyone and free of charge.

 

Core team of five pwLC from Germany.

The conference (15-16/5/24) line up is quite expansive. Along with others, the well-known names currently listed are —

Rob Wüst
David Tuller
Michael Stingl
Carmen Scheibenbogen
David Putrino
Bhupesh Prusty
Amy Proal
Resia Pretorius
Martin Kräter
Akiko Iwasaki
Mark Faghy
Wes Ely
Ron Davis
Todd Davenport
Danny Altmann

 

Who dat?

 

If you find out, can you let me know? I think he's a doppelganger!!

 

Updated Conference programme

 

Me neither, but I like the idea behind it. I do feel they've just started somewhere and are still finding out what direction to move in. Hopefully this organization grows in a good way, I can see the potential benefits of working together.

 

And dedicated to Lauren:

 

Thank you #UniteToFight2024 for including me in your speaker list. I am hoping to show you how ME/CFS differs from long COVID and how we can predict the severity of long COVID very early. Hopefully it will help us in developing better treatment strategies.

 

Posting this here for those who aren't on X. Not sure if this is the right place to post this but I thought I would keep it in one place.

I am extremely honored to be part of this patient-led initiative for a worldwide congress on Long COVID, #UniteToFight2024/
@U2Fight_World
Registration is free. My presentation on post-exertional malaise will be aimed at patients, clinicians, and scientists.

 

It would be interesting to hear the discussions on how Prusty will show how ME/CFS differs from long COVID and Wust's presentation on PEM.

 

Some negative responses on twitter to this announcement, some of it is legitimate, but this isn't like psychosomatic ideologues, I think it's better to involve people with significant influence than it is to shoo them away.

 

I wonder if trying to get Nath and Walitt to attend these kind of things would help them “get it” or if it is already a “lost cause”.

 

From the FAQ:

"Yes, we will publish all the videos on our website and YouTube after the conference."

https://unitetofight2024.world/faq/

 

Press release 10th May 2024 —

https://unitetofight2024.world/news/press-release-2024-05-10/

 

Trial by Error by David Tuller
Interview with Co-Organizator of Next Week's Unite To Fight Long Covid and ME/CFS Conference

An interview with Marco Wetzel on "why and how he and his colleagues decided to organise this event". From 8th May.

 

Very impressive what they've done in a small time-frame. Hope this leads to something tangible for the future.