Updates from the UK ME/CFS Biobank / CureME team

Sounds great. I hope it gets lots of viewing. But shame on the BBC for only putting it on iPlayer, not on a main channel. Great to hear they will be able to promote it on the BBC radio and TV. So pleased the Biobank team are taking a lead role in this - they are the biggest biomedical ME research team in the UK, as far as I know.
 
MeSci said:
It seems to have been at https://www.bbc.co.uk/programmes/b0b19jvm#play at about 42.15, until about 47.22. Just listening now.
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I like Luis Nacul, I'm glad to hear him being interviewed more. This is what we need more of to change the narrative.
After that they plug the newsbeat program and read out someones email and say they would like to hear from more people....
continues around 2.04.00 with a bit more for a couple of minutes.
Picks up again around 2.36.00 with more guests including Emma Donahoe and Jen Brea.
eta: brilliant discussion
 
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-- Calling all researchers! --

This Christmas, we raised over £17,000 from generous donors over the course of our Christmas crowdfunding campaign. Today, we are beginning the process of turning that into real ME/CFS research.

We are going to use this money to make a release (or releases) from the Biobank free of charges or administrative costs. Researchers from anywhere in the world are encouraged to apply and make use of our samples - we hope this initiative can enable research where it might not otherwise have happened.

Full details are on our website - please share with your networks, including particularly any scientist colleagues.

http://cureme.lshtm.ac.uk/funding-call-for-researchers/
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Facebook post
 
Research update
We are in the final month of our six-month study into human herpesvirus infection and ME/CFS, and our lab staff are doing lots of DNA extraction from your samples.

Many thanks to our 60 dedicated and committed participants - this study has had a phenomenally high return rate, of well over 95% of samples being returned every month! We're so grateful to you all.

Analyses will continue through the summer, with publication expected later this year or early next.
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https://www.facebook.com/mecfsbiobank/posts/1792412554139513:0
 
Addition to the team
We're delighted to introduce our new Research Fellow, Kathleen Mudie, who joins the team today.

She comes from another group at the London School of Hygiene & Tropical Medicine, and has wide experience of infectious and non-communicable disease. She'll be working across our clinical and epidemiological research projects, and you'll hear more from her in the coming months. Welcome Kathleen!
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This week, Eliana and Luis are in Berlin, teaching on diagnostic tools, biobanking and clinical research for the European Summer School for Translational Research in ME/CFS, funded by the COST - European Cooperation in Science and Technology EUROMENE network

They'll be meeting young researchers from all across Europe!
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