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Updates from the UK ME/CFS Biobank / CureME team

Discussion in 'ME/CFS research news' started by Andy, Feb 14, 2018.

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  1. Trish

    Trish Moderator Staff Member

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    Sounds great. I hope it gets lots of viewing. But shame on the BBC for only putting it on iPlayer, not on a main channel. Great to hear they will be able to promote it on the BBC radio and TV. So pleased the Biobank team are taking a lead role in this - they are the biggest biomedical ME research team in the UK, as far as I know.
     
    Trish, May 4, 2018
    #21
    Luther Blissett, Invisible Woman, Binkie4 and 6 others like this.
  2. Daisybell

    Daisybell Senior Member (Voting Rights)

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    Can iplayer be accessed from overseas?
     
    Daisybell, May 4, 2018
    #22
    Luther Blissett, Invisible Woman and Hutan like this.
  3. Andy

    Andy Committee Member

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    I understand that it's because it's being produced by BBC Newsbeat, which focuses on content for 18-24 year olds, and they, BBC Newsbeat, focus on releasing their output via iPlayer.
     
    Andy, May 4, 2018
    #23
    Luther Blissett, Invisible Woman, MeSci and 7 others like this.
  4. TiredSam

    TiredSam Committee Member

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    Not any more, sadly, since they started blocking VPNs. Or at least, I haven't found a way :(.
     
    TiredSam, May 5, 2018
    #24
    Luther Blissett, Invisible Woman, Daisybell and 4 others like this.
  5. Andy

    Andy Committee Member

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    Andy, May 6, 2018
    #25
    MEMarge, Luther Blissett, Invisible Woman and 9 others like this.
  6. Cheshire

    Cheshire Moderator Staff Member

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    Cheshire, May 10, 2018
    #26
    MEMarge, Luther Blissett, adambeyoncelowe and 5 others like this.
  7. Andy

    Andy Committee Member

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    The image only - interesting that it's talking about extracellular vesicles (EVs), that's something that seems to be of increasing interest recently.
    Aenjq0E.jpg
     
    Andy, May 10, 2018
    #27
    MEMarge, Hutan, janice and 7 others like this.
  8. MeSci

    MeSci Senior Member (Voting Rights)

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    Last edited: May 10, 2018
    MeSci, May 10, 2018
    #28
    MEMarge, Luther Blissett, adambeyoncelowe and 4 others like this.
  9. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    I like Luis Nacul, I'm glad to hear him being interviewed more. This is what we need more of to change the narrative.
    After that they plug the newsbeat program and read out someones email and say they would like to hear from more people....
    continues around 2.04.00 with a bit more for a couple of minutes.
    Picks up again around 2.36.00 with more guests including Emma Donahoe and Jen Brea.
    eta: brilliant discussion
     
    Last edited: May 10, 2018
    Sly Saint, May 10, 2018
    #29
    MEMarge, Hutan, adambeyoncelowe and 7 others like this.
  10. Cheshire

    Cheshire Moderator Staff Member

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    Cheshire, May 10, 2018
    #30
    Luther Blissett, adambeyoncelowe, Invisible Woman and 2 others like this.
  11. Andy

    Andy Committee Member

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    From this Facebook post


    32289546_1789636124417156_6187710047057870848_n.png
     
    Andy, May 12, 2018
    #31
    Binkie4, MEMarge, Hutan and 15 others like this.
  12. Skycloud

    Skycloud Senior Member (Voting Rights)

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    Now contrast the ME/CFS biobank facebook post with the Esther Crawley and BACME online efforts for ME Awareness day...
     
    Skycloud, May 12, 2018
    #32
    Hutan, Luther Blissett, adambeyoncelowe and 6 others like this.
  13. Londinium

    Londinium Senior Member (Voting Rights)

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    Apologies if this has already been posted elsewhere (I was abroad last week, am well behind on posts :)) but Newsbeat upload most of their documentaries to Youtube. Non-UK people can find it here:

    https://www.youtube.com/watch?v=XLPCuEdqIWY


     
    Londinium, May 14, 2018
    #33
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  14. Cheshire

    Cheshire Moderator Staff Member

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    Cheshire, May 14, 2018
    #34
    Skycloud, Invisible Woman, Hutan and 10 others like this.
  15. Cheshire

    Cheshire Moderator Staff Member

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    Cheshire, May 15, 2018
    #35
    MeSci, Invisible Woman, Londinium and 16 others like this.
  16. Andy

    Andy Committee Member

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    Facebook post
     
    Andy, May 17, 2018
    #36
    JohnM, Luther Blissett, Hutan and 9 others like this.
  17. Andy

    Andy Committee Member

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    Andy, May 25, 2018
    #37
    Esther12, andypants, Daisybell and 12 others like this.
  18. Andy

    Andy Committee Member

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    Research update
    Code:
    https://www.facebook.com/mecfsbiobank/posts/1792412554139513:0
    https://www.facebook.com/mecfsbiobank/posts/1792412554139513:0
     
    Andy, Jun 23, 2018
    #38
    Skycloud, Inara, Indigophoton and 5 others like this.
  19. Andy

    Andy Committee Member

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    Addition to the team
     
    Andy, Jun 25, 2018
    #39
    Inara, Esther12, Sunshine3 and 8 others like this.
  20. Andy

    Andy Committee Member

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    Code:
    https://www.facebook.com/mecfsbiobank/posts/1836311526416282
     
    Andy, Jun 26, 2018
    #40
    MEMarge, Inara, Indigophoton and 4 others like this.
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