ahimsa
Senior Member (Voting Rights)
Solve ME has created an automated tool (meant for folks in the USA) that will contact your Member of Congress (email/phone/twitter) and ask them to support a new "home" for "Infection-Associated Chronic Conditions and Illnesses" (IACCIs).
Text part of the automated tool:
There's another thread that discusses this general idea of creating a new NIH office:
https://www.s4me.info/threads/the-n...erican-association-of-scientists-2024.37668/\
I think it's better to debate the issue on that thread (should a new NIH office be created?) and leave this thread to discuss advocacy issues (e.g., does the tool work, are there better ways to achieve this goal).
But if I'm wrong I hope the moderators will move/merge threads as needed.
Text part of the automated tool:
Solve ME said:Educate your Members of Congress about a "HOME" for IACCIs at NIH
Infection-associated chronic illnesses and conditions are a public health crisis!
Diseases like ME/CFS, Long COVID, POTS and other forms of Dysautonomia need your help! Educate your Members of Congress:
- IACCIs average $5.2 million per year in funding from NIH
- IACCIs impact between 33.1 million-73.3 million Americans (estimated)
- Studies on major IACCIs are distributed between 16 different institutes and centers with no coordination
- Studies are often duplicated or exploring unhelpful areas of research (eg. exercise or mental health) and not focused on treatments
- We seek a coordinating mechanism at NIH to reduce duplication, fast-track treatments, and more efficiently use existing research resources
Read full publication "A Home for Infection-Associated Chronic Conditions and Illnesses (IACCIs) at NIH" here
Ask your Member of Congress to read this important publication!
There's another thread that discusses this general idea of creating a new NIH office:
https://www.s4me.info/threads/the-n...erican-association-of-scientists-2024.37668/\
I think it's better to debate the issue on that thread (should a new NIH office be created?) and leave this thread to discuss advocacy issues (e.g., does the tool work, are there better ways to achieve this goal).
But if I'm wrong I hope the moderators will move/merge threads as needed.
