A recording from the July 2 Solve M.E. webinar "Covid Vaccinations: Efficacy, Options, and Special Considerations for Chronic Illness" is now available: https://www.youtube.com/watch?v=xqTA4RPrj38
Update from Solve ME about one of their Ramsay Research Grants: A Root Cause for ME/CFS, Long Covid, and Post-Vaccine COVID-19 Syndrome: Damaged Pituitary Glands https://solvecfs.org/a-root-cause-f...e-covid-19-syndrome-damaged-pituitary-glands/ The study is discussed in this forum thread: https://www.s4me.info/threads/hypoc...-me-2024-ruiz-pablos-et-al.39101/#post-541947
Watch! Solve Ramsay Research Grant winner Rob Wüst, PhD presents "Skeletal Muscle Fatigue & Post-Exertional Malaise (PEM) in People with Long Covid & Implications for ME/CFS." Dr. Wüst received a Solve M.E. Ramsay Research Grant in 2022 to study muscle pain, PEM, and treatments for pain and malaise in patients with diseases like Long Covid and ME/CFS. He found that, at the physiological and molecular levels, PEM differs from general fatigue. These differences have big implications for how physical exercise affects patients with Long Covid or ME/CFS. In this webinar, Dr. Wüst updates us on his studies of these two central symptoms of Long Covid and ME/CFS (PEM and general fatigue), and answers questions from attendees. Watch here: https://ow.ly/fXYf50TCPwQ ***** Thread related to the research here: Muscle abnormalities worsen after post-exertional malaise in long COVID, 2023/4, Wüst, van Vugt, Appelman et al
Just posted on Facebook www.facebook.com/story.php?story_fbid=953500123487285&id=100064819177796 about asking people to ask NIH to support their me/cfs research map to advance research
(posting info on this thread since the link goes to Solve ME website) Free webinar from Bateman Horne Center and Solve M.E. - Severe ME/CFS: Care, Rights, and Research, 4-Part Webinar Series Legal Rights (Pt. 2 of 4) Wednesday, November 13 10:00 am - 11:00 am PST / 1:00 pm - 2:00 pm EST https://solvecfs.org/event/severe-m...search-webinar-series-legal-rights-pt-2-of-4/ Find time in your time zone here: https://www.timeanddate.com/worldcl...ghts+(Pt.+2+of+4)&iso=20241113T10&p1=202&ah=1 Register for one or more of the events in the series here: https://us02web.zoom.us/webinar/register/WN_YjCfUvHiQnmuAG6yV3jORw
"Creating a research home for ME/CFS, Long Covid, and others" November 5, 2024 "Despite the significant disease burden, Myalgic encephalomyelitis (ME), previously known as chronic fatigue syndrome (CFS), lacks effective diagnostics and therapeutics. Emily Taylor, President and CEO of Solve M.E., explains why dedicated research for Infection-Associated Chronic Conditions and Illnesses (IACCIs) such as ME/CFS is vitally needed" https://www.openaccessgovernment.or...home-for-me-cfs-long-covid-and-others/184620/
Solve M.E. and Bateman Horne Center are jointly co-hosting a 4 part webinar for the benefit of patients and caregivers navigating life with severe ME/CFS. See https://www.s4me.info/threads/usa-news-from-solve-me.19489/page-9#post-564311 for more details. A recording of the first one - Session 1: Caregiving (about 1 hour long) - is now available on SolveME's youtube channel: https://www.youtube.com/watch?v=V155JBdt3bA
The latest blog post from Solve ME, "a special message from Solve M.E. President and CEO Emily Taylor." Hope Amid Uncertainty https://solvecfs.org/hope-amid-uncertainty/ Here's are the hopeful items that she lists, see blog post for full details. The Edge of Medicine Conference Simmaron Research Study Findings and the Rapamycin Trial Ampligen Clinical Trial Results Indicate Success in Treating Fatigue in People with Long Covid Educating Medical Providers with the Inclusion of ME/CFS and Long Covid in Grand Rounds
Upcoming Solve ME webinar: The Future of IACCI and Long Covid Research: ME/CFS and the Unfinished work of the COPVS Task Force Wednesday, December 18 10 AM Pacific / 1 PM Eastern / 6 PM in Great Britain & Ireland https://solvecfs.org/event/the-futu...-the-unfinished-work-of-the-copvs-task-force/ Find the time in your time zone here: https://www.timeanddate.com/worldclock/fixedtime.html?msg=Solve+ME+Webinar:+The+Future+of+IACCI+and+Long+Covid+Research&iso=20241218T10&p1=137&ah=1
