USA: RTHM Health

Cedar said:
Oh, and the suggestion to pre-hydrate well right before showering. We never thought of that and it’s worth trying on his shower day.
Click to expand...
These and more tips can also be found in the Bateman publications such as
The ME/CFS Crash Survival Guide
But as you already noticed with the dxm recommendation, it’s always a good idea to double check with s4me.

Your son might also find good ear plugs helpful during the travel.
Starting here we have some discussion about the terrific Honeywell Maxlite ear plugs:
This links to a pack of 200, but there are also smaller packages if you search a bit.

Last but not least, we have a thread on different resources for carers of severe pwME.
I‘m a big fan of this guide:
Chandelier

Post in thread 'Transdisciplinary Expert Statement: care guide for people severely affected by ME/CFS in home-based care, 2026, Hermisson et al'

The official English version has been published:

Guidance on Home-Based Care for People with Severe ME/CFS: A Transdisciplinary Expert Statement, 2026, Hermisson et al.

Hermisson, Joachim; Schreiner, Claudia; Weichselbaumer, Stefanie; Werner, Marlene; Hackl, Verena; Roth, Jacob; Leiss, Sandra; Maukner, Anna Christina; Wojczewski, Silvia; Hainzl, Astrid; Hermisson, Sabine; Thonhofer, Kevin; Pleschberger, Sabine; Hoffmann, Kathryn

Abstract​

Background​

Many patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) have significant care needs. However...
  • Like
 
I only listened to a few minutes towards the end because I had seen online that Dr. Putrino had mentioned mitochondrial transplantation, something I have never heard of, especially not in ME or Long COVID.

Many treatments we’ve heard before were mentioned by Dr. Putrino and Dr. Curtin in the few minutes I’ve watched- oxaloacetate, NAD injections, B1 supplements, COQ10, oxygen, saline infusions, etc. Each person claimed that all the drugs mentioned helps certain portions of their patients, but we can’t really take anything from of those statements.

It’s good to be able to come on here and cross reference what the evidence says about these supplements.

Or, if there are no studies, trials should be done to back up the claims.
 
Last edited:
You must log in or register to reply here.
Back
Top Bottom