Webinar: Centre for Welfare Reform: Improving Policies for Welfare & Work with Energy Limiting Chronic Illness, 27th April 2021, 11am UK

Andy

Andy

Retired committee member
Launch of a report on the exclusion of disabled people with energy limiting chronic illness (ELCI) and strategies for inclusion and support.

About this Event

I already have a job...just getting through the day: energy limiting chronic illness, social inclusion, employment and social security is a ground-breaking collaboration between Chronic Illness Inclusion and Leeds University Business School.

Come to the launch event and discover:

  • What is energy-limiting chronic illness (ELCI)
  • How disabled people with ELCI are failed by the system
  • How the disability benefit system could support inclusion and opportunity
  • How to adapt jobs to enable more people with ELCI to work
https://www.eventbrite.co.uk/e/impr...limiting-chronic-illness-tickets-146943896149
 
Nearly fell over, with fright.

The invitations say 12:00 London time (BST)

“Topic: CHMEH seminar series: Energy impairment and disability inclusion

Time: Apr 9, 2021 12:00 PM London“

just in case anyone else wants to join.
 
"Our Latest Report

The ‘I already have a job…’ report, by Chronic Illness Inclusion and Leeds University Business School, sets out how government, employers and the benefits system are failing millions of people in the UK with Energy Limiting Chronic Illnesses – (ELCIs).

Although one-in-three disabled people of working age experiences problems with stamina, breathing or fatigue, the report says that their needs are not reflected in the workplace, in legislation, or by disability assessments like the Work Capability Assessment (WCA).

Despite ELCIs affecting almost 5 million adults in the UK, these people are hidden within disability-related policies because their lived experiences of illness and impairment is widely misunderstood, often discredited, denied and disbelieved.
...."
Full report available from https://chronicillnessinclusion.org.uk/i-already-have-a-job-getting-through-the-day/
 
Andy said:
Launch of a report on the exclusion of disabled people with energy limiting chronic illness (ELCI) and strategies for inclusion and support.

About this Event

I already have a job...just getting through the day: energy limiting chronic illness, social inclusion, employment and social security is a ground-breaking collaboration between Chronic Illness Inclusion and Leeds University Business School.

Come to the launch event and discover:

  • What is energy-limiting chronic illness (ELCI)
  • How disabled people with ELCI are failed by the system
  • How the disability benefit system could support inclusion and opportunity
  • How to adapt jobs to enable more people with ELCI to work
https://www.eventbrite.co.uk/e/impr...limiting-chronic-illness-tickets-146943896149
Click to expand...
Updated speaker list
"Speakers Include:

Dr Jo Ingold, Associate Professor, Human Resource Management, Deakin University

Catherine Hale, Director, Chronic Illness Inclusion

Stef Benstead, Author of Second Class Citizens

Dr Kate Hardy, Associate Professor in Work and Employment Relations, Leeds University (tbc)

Victoria Clutton, research participant

Astriid employment support agency

And, will be joined by:

Carol Monaghan MP, Chair of the All-Party Parliamentary Group on Myalgic Encephalomyelitis (ME)

Vicky Foxcroft MP, Shadow Minister for Disabled People"
 
Article on the report.

Chronic illness community faces culture of disbelief and rigid jobs policies, says report

"Millions of people with energy-limiting chronic illness (ELCI) are being failed by both employers and the Department for Work and Pensions (DWP), according to a new user-led report.

The study found that the flaws within the disability benefits system create a “a deep-seated social insecurity” for people with ELCI, largely because of a “culture of disbelief” which undermines and hampers their efforts to engage with society.

But it also found that “inflexible, performance-based and rigid” employment policies created barriers for those who were able to do some work.

The report – I Already Have A Job… – is based on focus group discussions with people with ELCI, and has been published by the disabled people’s organisation Chronic Illness Inclusion and Leeds University Business School.

The report concludes that work can harm the health of people with ELCI, and that their primary limitations are the amount of work they are able to carry out, and their fluctuating capability to carry out work from day to day."

https://www.disabilitynewsservice.c...isbelief-and-rigid-jobs-policies-says-report/
 
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