Wendy Boutillier's new book?

[MinIreland]

I just read on Facebook that Wendy Boutillier has published a book titled "Myalgic Encephalomyelitis: the devil is in the details".

I don't know what to think. Her posts on Facebook make me want to scream sometimes, because her posts are so 'detailed' while those details either don't seem important to me or they seem to be 'made up'. I just don't have the capacity to dive deep, so I usually just skim over it or ignore it.

Would anyone have a sense if it would be worth reading this book? Or would anyone like to give it a try and write a review?

 

[Jonathan Edwards]

It is hard to find much on the net but the sample to read on Amazon confirms that it is the same old "ME" folklore.

I have got tired of reading this, not just from advocates but from people who are supposed to be physicians and scientists. It's wrong and my answer to Karen on ThereforME's question "where to pivot?" might be 'junk the old folklore'. It guarantees that people with ME/CFS will continue not to be taken seriously by the few professionals that might do so. ME/CFS is not this "ME" from the 1950s.

 

[MinIreland]

It is hard to find much on the net but the sample to read on Amazon confirms that it is the same old "ME" folklore.

I have got tired of reading this, not just from advocates but from people who are supposed to be physicians and scientists. It's wrong and my answer to Karen on ThereforME's question "where to pivot?" might be 'junk the old folklore'. It guarantees that people with ME/CFS will continue not to be taken seriously by the few professionals that might do so. ME/CFS is not this "ME" from the 1950s.

Thank you @Jonathan Edwards. Sometimes I feel that it's even more harmful when people who want to be supportive of PwME actually are talking rubbish, compared to those who play the psychological card, for example.

 

[MrMagoo]

Thank you @Jonathan Edwards. Sometimes I feel that it's even more harmful when people who want to be supportive of PwME actually are talking rubbish, compared to those who play the psychological card, for example.

People seem to speak with such authority, yet the wisest are those who understand that we don’t understand much at all.

 

[Dolphin]

She is closely associated with the rapidly growing public Facebook group, the Nightingale Continuum (currently 17,100 members) which has one rule:

“We do not accept that ME is the same as CFS/SEID”.

It seems to lead to people going around Facebook (and probably elsewhere) criticising people for using ME/CFS and similar.

 

[Kitty]

“We do not accept that ME is the same as CFS/SEID”.

I suppose it's a good way of keeping sensible people out of the group, so they can discuss their belief systems unhindered by inconvenient questions.

 

[InitialConditions]

She is closely associated with the rapidly growing public Facebook group, the Nightingale Continuum (currently 17,100 members) which has one rule:

“We do not accept that ME is the same as CFS/SEID”.

It seems to lead to people going around Facebook (and probably elsewhere) criticising people for using ME/CFS and similar.

I recognised the name right away. She is one of the ME4ICC hardliners who were much more prominent about a decade ago. Will probably tell you Byron Hyde figured out ME decades ago. That sort of thing.