What can wage development before and after a G93.3 diagnosis tell us about prognoses for myalgic encephalomyelitis?, 2024, Kielland et al

In an era of performative government, I'm not even sure that holds. The equation seems to be that the media demands Something is Done, governments Do Something (it doesn't matter what or how much it costs), which diverts the media's attention elsewhere for a while. Repeat in every challenging policy area.

It was ever thus, but what's changed in recent years is the shamelessness in funding initiatives that are transparently set up to fail. Such as Britain commissioning a series of clinics for long Covid—a new medical entity that everyone agrees is very challenging—which don't even have doctors.

 

Any system has the capacity to convince itself of that. But capitalism is the only system that should care about efficacy on grounds of RoI alone. Show me the money? Well, it's flowing in one direction only. And yet here we are, a fake treatment model with a negative RoI based on pseudoscience, and neither capitalist nor humanitarian, or basic professionalism or even scientific or skeptic, sides care one bit that it clearly doesn't work and is highly deceptive.

Humans are just straight up weird. Some would gladly pay money to see some group of people suffer, even as they whine about being robbed by 'other' people. Or whatever. Just straight up weird stuff.

But for sure here decision-makers don't care because they believe the lies professionals tell them about this being effective. Even though they can't actually back it up with anything. No system can survive this kind of sabotage from within, unfortunately.

 

It feels like a sort of ruse to make a rehabilitation and then claim it should make people recover so that if they don’t recover it’s easy to claim it’s the patients fault who didn’t try hard enough etc and the government had done it’s duty by offering rehabilitation.

 

thank you for the tag - I hadn't seen this. Some reading for a Sunday!

 

The Norwegian ME Association is organising a webinar with researcher Anne Kielland tomorrow at 14.00 (local time) about this study.

It's free, in Norwegian and one can register here to attend.

 

ME Research UK:

Researchers from Norway have published an article in the journal “Social Sciences & Humanities Open” which investigates the wages earned by 1,523 people with a G93.3 diagnosis for “post viral fatigue syndrome – this includes “Benign Myalgic Encephalomyelitis".

Read more about how findings from the study might give an insight into the course and severity of ME/CFS here: https://bit.ly/4gzxOhD

 

Nesten ingen ME-pasienter kommer tilbake i jobb
https://www.forskning.no/helse-samf...en-me-pasienter-kommer-tilbake-i-jobb/2464548

 

English translation published today:

Science Norway: Almost no ME/CFS patients return to work

 

Another terrible summary of what ME/CFS is. But the article itself is free of any BPS.