What do we actually know about orthostatic intolerance?

[Sasha]

For the time-chart, would there be an option to block in for reclining as well as for horizontal ?

The polling format here on Zenforo isn't sophisticated enough for that, I'm afraid.

Also, when I get slightly lightheaded its constant until it wears off, whether in bed or sitting or upright, so its not particularly related to postural change. So would my entry mess up the timeline pattern if any other light heads etc only occur on changing posture or standing ?

I'm not focusing on postural change but on when in the day our OI is forcing us to lie down. My impression is that most of us find that the pressure to lie down builds and builds over time until we're forced to lie flat, rather than our OI being just brought on by posture change. (I'm sure a much more sophisticated approach would be better but that would involve wearables and a proper study!)

 

[bicentennial]

The polling format here on Zenforo isn't sophisticated enough for that, I'm afraid.

I'm not focusing on postural change but on when in the day our OI is forcing us to lie down. My impression is that most of us find that the pressure to lie down builds and builds over time until we're forced to lie flat, rather than our OI being just brought on by posture change. (I'm sure a much more sophisticated approach would be better but that would involve wearables and a proper study!)

maye afterwards the recliners can be polled separately for comparison

my pattern is currently stable in thatIi must recline "by day" and go for flat out all "night"l(except by sleep cycle is rotating again), reason being that i cannot currently sustain the generation of energy to power load-bearing muscle (no stamina)

but other things happem when more upright. Some since covid and fitting long covid, some from the time before covid when I found I could sit up again after a long time flat out so long that then I would not lie down again so i sat up stubbornly in a captains chair all day and night til my head blacked out and hit the table, 24/7

thing is before the flattened time i could stubbornly sit up crosslegged in bed all day, despite it hurting my legs and so on and tiring out my muscle, but i cannot sit up at length any more now since the captains chair ejected me and returnedme to my bed, wimpo that I am

there is a keyboard warrior out there called Mr Riley who has not apologised to me for weaponising my story and turning it against me in dicatorial editored unedited unedifying edifying unexpurgated editorial fashion, Mr R being a dedicated follower of fashion and amusing someone who amuses him no doubt - in his spare time, but all is forgiven because he lay down his sword and shield Mahalia, by the rivers of babylon

 

[bicentennial]

the wearables may follow becasue Mr Wes Streeting announced the pilots and provisions are proceeding apace on the NHS as fully pioneered already in Plymouth Hoe for the remote monitoring of i think Parkinsons and soon to be bespoke to other conditions and rolled out across the uk so he wants us to turn up at the portal he is opening for ethical non-euthanising patient participation in this researchable and clinical experiment - see HIS new Delivery Plan for ME / CFS (UK)

Parkinsons Prioritsed for Pilot due to falls, so M.E / CFS is high upon the NHS waiting list for the next roll-out, high up there alongside the frail elders also waiting to be removed for the waiting lists

but we must must must speak for ours !!! !!!V!!! at the portal !!! !!! !!! elves now that the the MEA Trustees speaking for all af us with our blessing however can no longer differentiate between the 2 cohorts since falling into both at once .... with all due respects reciprocated

so this simple easy peasy poll emerged in the nick of time t indicate the profitable evidence base that can supersede rehab in all such cases once sold to the tech indsr=try

see the usa thread on wearable prospects here https://www.s4me.info/threads/impac...e-cfs-and-long-covid.41047/page-8#post-575993 because our Elon may be addng it to the Tesla portfolio, as we speak, the wearable sensors to measure and monitor your cases of chronic pain and its recesssions, making the diagnoisis of "woman" less challellenging

 

[bicentennial]

and see here https://www.s4me.info/threads/impac...e-cfs-and-long-covid.41047/page-7#post-575914

and when the time is ripe at the wearable rollout Wes Streeting portal, maybe change the name of this poll thread to ? what do we know about the horizontal (timeline)?

which implies there may also be a vertical timeline so if time has 2 axes as in 2D space x and y co-ordinates, maybe time has 3 timeline axes as in 3D space vectors, x..y..z .... no wonder we can't be mapped and a.i wants a try but what does a.i know about time passing

edit because the link was not translating to the post (after i had added the post number to the link in a prior edit but found it just reverted back to the original hyperlink in the event)