What it's like to have Chronic Fatigue Syndrome, an illness that makes you feel exhausted all the time

Sly Saint

Senior Member (Voting Rights)
I thought I might have seen this posted somewhere but can't find it.
It says 2018 but from the link it might be from 2016.:
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Alison Millington
Mar. 22, 2018

"
  • Living with CFS feels like being tired all the time — but it's so much more than being tired.
  • The illness is thought to affect at least 17 million people worldwide, and four times as many women as men.
  • It's normally triggered by viral infections like glandular fever, and can last a lifetime.
  • It can come along with headaches and a foggy brain, making simple tasks difficult.
  • While a 2011 trial suggested CFS can be helped with exercise or psychological therapy, a new analysis of the study found that there are actually no longer-term benefits of either.
After months of struggling both mentally and physically to do simple tasks, dealing with a constantly foggy brain and serious exhaustion that wouldn’t go away no matter how much I slept, a doctor told me I had Chronic Fatigue Syndrome (CFS).

Having never heard of it, my response was skeptical, and somewhat annoyed — similar to when you’re told "it’s only a virus" after having a miserable cold for weeks on end.

It felt like a cop-out. But when she told me that there was a chance it would never go away, and the only way to help it was to "avoid exerting too much energy," I decided to do my research.

That was four years ago. Since then, I've learned many things about CFS, including what it is and, just as importantly, what it isn't."

http://uk.businessinsider.com/chronic-fatigue-syndrome-symptoms-what-its-like-2016-11
 
It's a mix of good and bad - good in emphasising that GET doesn't work, and rest is best, but then it confuses the issue because she seems to be one of the lucky few who recovered sufficiently to be able to exercise again.
Good in mentioning PACE being debunked by Wilshire's paper, but awful in praising Crawley's FITNET study which is so unscientific it will do huge harm. And I wish people wouldn't describe it as being tired all the time.
 
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