World ME awareness day May 12, 2025

A worthwhile X thread on myth busting, that dominated UK “action”.

The websites linked in the twitter post are highly recommended reading for advocates because it’s even worse than myth-busting simply not working:
”opportunityagenda.org” said:
Research and experience show that this [myth busting] only results in deepening the myth in our audiences’ minds. The repetition of misinformation can cause us to better remember it, but we won’t necessarily remember that it was wrong information.
https://opportunityagenda.org/messaging_reports/telling-an-affirmative-story/
 
Deputy leader and possibly soon to be leader of the UK Green Party
This man Zac Polanski who tweeted support has just become leader of the Green Party, which has a justice/ fairness agenda. A chance for some more ally building & political pressure. Adrian Ramsey & Sian berry Green MPs sit on the long covid & ME all party parliamentary group. Only 4 MPs so far but this could change although a long time ahead
 

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