World ME awareness day May 12, 2025

I posted this in the news from #MEAction forum but I thought I'd also post it here.

Executive director Laurie Jones sent out an email update that includes photos / videos:

Update from #MEAction on Millions Missing 2025

 

Photo gallery of the German Protests. Looks good.
https://www.fatigatio.de/aktuelles/...ddemo-berlin-hamburg-mecfs-awareness-day-2025

 

ME Association

Stacey Hollings performs a touching interpretation of 'This is Me' from The Greatest Showman to raise awareness of ME/CFS

Credit: This is ME Cover The Greatest Showman Words and Music by Benj Pasek and Justin Paul

https://www.youtube.com/watch?v=3P9fDPQxkxU

 

#MEAction sent out another update (text for link is from the email subject line):

#MillionsMissing 2025: SOS - The Signal Was Sent!

Lots more photos and videos - from the protest in DC, from folks who posted from home, and from other countries.

Also updates on meetings with congress, more signatures on the #MEAction letter to NIH, the fight to save Medicaid from budget cuts, and more.

 

A worthwhile X thread on myth busting, that dominated UK “action”. https://twitter.com/user/status/1923433016296145014

 

The websites linked in the twitter post are highly recommended reading for advocates because it’s even worse than myth-busting simply not working:

https://opportunityagenda.org/messaging_reports/telling-an-affirmative-story/