1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for 'CFS'.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 15th July 2024 is here.
    Dismiss Notice
  3. Welcome! Read the Core Purpose and Values of our forum.
    Dismiss Notice

Advocacy Action Alerts

Page 1 of 8
Sort By:
Title Start Date
Replies Views
Last Message ↓
  1. Braganca

    Tell the New York Times about ME

    Braganca, Feb 2, 2024
    Replies:
    2
    Views:
    557
    wingate
    Feb 5, 2024
  2. Amw66

    A UK father on Twitter looking for experiences of harms from medical care for POTS, EDS and MCAS

    Amw66, Oct 24, 2023
    Replies:
    2
    Views:
    454
    Amw66
    Oct 24, 2023
  3. Adam pwme

    Very Severe ME - Photo Request

    Adam pwme, Jul 29, 2023
    Replies:
    2
    Views:
    625
    Hutan
    Aug 2, 2023
  4. ahimsa

    USA: Ask your Members of Congress to support the CARE for Long COVID Act! (from Solve M.E.)

    ahimsa, Apr 17, 2023
    Replies:
    1
    Views:
    657
    ahimsa
    Apr 18, 2023
  5. Laurie P

    USA: Urge the Social Security Administration to Allow SSI Recipients to Receive Help with Groceries without a cut in Benefits. Act by April 17, 2023.

    Laurie P, Apr 5, 2023
    Replies:
    0
    Views:
    629
    Laurie P
    Apr 5, 2023
  6. Hutan

    Germany: IQWIG General Methods Handbook - submissions due on draft now 28 February 2023

    Hutan, Dec 14, 2022
    Replies:
    7
    Views:
    1,749
    MSEsperanza
    Feb 19, 2023
  7. Sly Saint

    AFME - Association for Myalgic Encephalomyelitis website (not Action for ME)

    Sly Saint, Oct 30, 2019 ... 2
    Replies:
    28
    Views:
    2,924
    bobbler
    Dec 30, 2022
  8. Andy

    UK: Survey: The Brain Charity: Have your say on neurological delays and misdiagnoses

    Andy, Oct 20, 2022
    Replies:
    2
    Views:
    892
    Sly Saint
    Nov 23, 2022
  9. JemPD

    UK Deadline 23rd Nov. Submit input into parliamentary debate for UN Day of Disabled People

    JemPD, Nov 19, 2022
    Replies:
    1
    Views:
    798
    NelliePledge
    Nov 19, 2022
  10. John Mac

    ME/CFS - course of illness survey, 2022, Norwegian ME Association, open to all

    John Mac, Sep 9, 2022
    Replies:
    15
    Views:
    1,600
    trudeschei
    Sep 27, 2022
  11. ahimsa

    USA - 2022 Millions Missing protest: Online training session for those taking action from home

    ahimsa, Sep 10, 2022 ... 2
    Replies:
    21
    Views:
    2,575
    NelliePledge
    Sep 19, 2022
  12. Andy

    UK: NeuroLifeNow: regular surveys of people with neurological conditions

    Andy, Aug 17, 2022
    Replies:
    5
    Views:
    969
    livinglighter
    Aug 17, 2022
  13. Andy

    UK: Help Disabled people survive the cost of living crisis [send a letter to your MP]

    Andy, May 22, 2022
    Replies:
    2
    Views:
    818
    josepdelafuente
    May 22, 2022
  14. Noir

    UK: Long Covid protests calling for more research, Wed 9th March 2022

    Noir, Feb 2, 2022
    Replies:
    9
    Views:
    1,625
    Noir
    Mar 10, 2022
  15. Sly Saint

    Sign on to #MEAction’s response to flawed CDC review, deadline 15th Aug 2021

    Sly Saint, Aug 13, 2021 ... 2
    Replies:
    30
    Views:
    3,157
    Sly Saint
    Dec 20, 2021
  16. Haveyoutriedyoga

    Nov 2021: Call for patient public reviewers for BMJ Health and Care Informatics

    Haveyoutriedyoga, Nov 17, 2021
    Replies:
    4
    Views:
    1,305
    Arnie Pye
    Nov 19, 2021
  17. brf

    Millions Missing Canada advocacy, letter to political leaders during Federal Election 2021

    brf, Aug 20, 2021
    Replies:
    7
    Views:
    1,339
    brf
    Aug 26, 2021
  18. JoanneS

    2021 UK: ME Association - NICE and the unpublished ME/CFS guideline - contact your MP

    JoanneS, Aug 24, 2021
    Replies:
    8
    Views:
    1,493
    Sbag
    Aug 26, 2021
  19. Emily Taylor

    Tell Your Representative to SUPPORT INCREASED FUNDING FOR POST-VIRAL-DISEASE RESEARCH INTO ME/CFS!

    Emily Taylor, Jul 17, 2020 ... 2
    Replies:
    23
    Views:
    3,926
    rvallee
    Jul 18, 2021
  20. Kalliope

    2021 Guardian Australia: Request for contact from people with multiple chronic pain conditions

    Kalliope, May 26, 2021
    Replies:
    5
    Views:
    1,041
    Wyva
    May 26, 2021
Showing threads 1 to 20 of 147

Thread Display Options

Loading...
Page 1 of 8