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Advocacy Projects and Campaigns

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  1. Hutan
    Sticky

    Australia: 2022 Parliamentary inquiry into Long Covid and repeated covid infections - report issued April 2023

    Hutan, Sep 30, 2022 ... 2 3 4
    Replies:
    72
    Views:
    4,826
    Sly Saint
    Apr 25, 2023
  2. Andy
    Sticky

    International: Science for ME social media posts

    Andy, May 1, 2022 ... 3 4 5
    Replies:
    95
    Views:
    5,009
    Andy
    Jun 5, 2023 at 9:58 AM
  3. Andy

    UK: ME Association: Count ME In [survey]

    Andy, May 22, 2023
    Replies:
    18
    Views:
    801
    Fainbrog
    May 24, 2023
  4. IanMcPhee

    New Walk for ME website is now live and on social media

    IanMcPhee, May 21, 2023
    Replies:
    1
    Views:
    240
    ahimsa
    Jun 2, 2023 at 8:45 PM
  5. Sly Saint

    ME/CFS Medical Education Campaign UK - UK website and blog by Katie Johnstone

    Sly Saint, May 8, 2023 ... 2
    Replies:
    25
    Views:
    969
    Katie - ME/CFS Med Ed
    May 14, 2023
  6. ahimsa

    UK: Campaign called #MPDoYourJobForME

    ahimsa, Mar 22, 2023
    Replies:
    0
    Views:
    259
    ahimsa
    Mar 22, 2023
  7. TiredSam

    EU protests: request for pictures

    TiredSam, Feb 28, 2023
    Replies:
    2
    Views:
    895
    Dolphin
    Mar 5, 2023
  8. Andy

    ME Awareness Day / Week / Month, May 2023

    Andy, Feb 5, 2023 ... 2
    Replies:
    36
    Views:
    3,037
    Laurie P
    Jun 2, 2023 at 2:27 AM
  9. wabi-sabi

    2023 Washington Post article: 'For Long Covid fatigue, a strategy called 'pacing' helps, but at a cost

    wabi-sabi, Jan 18, 2023
    Replies:
    2
    Views:
    1,004
    ahimsa
    Jan 19, 2023
  10. Sly Saint

    Bing ME/CFS information

    Sly Saint, Oct 18, 2022
    Replies:
    0
    Views:
    415
    Sly Saint
    Oct 18, 2022
  11. Andy

    United Kingdom 2022: Action for ME (AfME) Consultation on media guidelines

    Andy, Aug 18, 2022 ... 2
    Replies:
    25
    Views:
    2,240
    Fainbrog
    Dec 29, 2022
  12. RoseE

    M.E. and me (My Story as a Teen with ME/CFS) - Youtube Channel

    RoseE, Aug 18, 2022
    Replies:
    3
    Views:
    691
    Sly Saint
    Aug 19, 2022
  13. bobbler

    marketing I like for women's sport - could this sort of thing work for ME?

    bobbler, Aug 4, 2022
    Replies:
    0
    Views:
    586
    bobbler
    Aug 4, 2022
  14. Sly Saint

    Off-Kilter Podcast: “The Long Haul”: Inside the Patient Advocacy Revolution of the COVID Era (Part 1 of an #ADA2022 Special)

    Sly Saint, Jul 2, 2022
    Replies:
    0
    Views:
    489
    Sly Saint
    Jul 2, 2022
  15. Sly Saint

    USA: #MEAction: Email Doctor Unger about the Misinformation at CDC

    Sly Saint, May 28, 2022
    Replies:
    0
    Views:
    464
    Sly Saint
    May 28, 2022
  16. Andy

    Exploration of the idea of a register of patient advocates

    Andy, May 27, 2022 ... 2
    Replies:
    23
    Views:
    1,177
    MSEsperanza
    Jun 7, 2022
  17. Tara Green

    Help with Advocating - responding to claims that ME is a psychological illness

    Tara Green, May 25, 2022
    Replies:
    16
    Views:
    1,075
    Tara Green
    May 31, 2022
  18. Phoebe

    ‘descriptions: a patient-led description of ME, composed from the words of people with ME’, a found poem by Alec Finlay

    Phoebe, May 20, 2022
    Replies:
    0
    Views:
    647
    Phoebe
    May 20, 2022
  19. Hutan

    New Zealand: HealthInfo ME/CFS pages - feedback please before 25 May 2022

    Hutan, May 19, 2022
    Replies:
    13
    Views:
    1,018
    Subtropical Island
    Apr 23, 2023
  20. Andy

    Webinar: Challenging Disbelief and Disregard in relation to Medicine, Chronic Illness and Disability, 24th May 2022

    Andy, May 10, 2022
    Replies:
    1
    Views:
    516
    Arnie Pye
    May 10, 2022
  21. Kalliope

    Instagram profile: Illustrating M.E.

    Kalliope, Apr 29, 2022
    Replies:
    7
    Views:
    676
    Midnattsol
    May 19, 2023
  22. Wyva

    Help needed: Send messages to Hungarian pwME for my ME Awareness Day project

    Wyva, Apr 27, 2022 ... 2
    Replies:
    23
    Views:
    967
    Sarah
    May 8, 2022
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