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Advocacy Projects and Campaigns

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  1. wabi-sabi

    2023 Washington Post article: 'For Long Covid fatigue, a strategy called 'pacing' helps, but at a cost

    wabi-sabi, Jan 18, 2023
    Replies:
    2
    Views:
    1,993
    ahimsa
    Jan 19, 2023
  2. Andy

    United Kingdom 2022: Action for ME (AfME) Consultation on media guidelines

    Andy, Aug 18, 2022 ... 2
    Replies:
    25
    Views:
    4,344
    Fainbrog
    Dec 29, 2022
  3. Adam pwme

    Updated - The PACE trial: Harm Video

    Adam pwme, Apr 22, 2020
    Replies:
    17
    Views:
    3,280
    Sly Saint
    Dec 9, 2022
  4. Andy

    A potential S4ME project: What are the basic science facts that ME advocates need to know and understand?

    Andy, Oct 5, 2019 ... 2 3
    Replies:
    59
    Views:
    9,514
    Trish
    Dec 3, 2022
  5. Sly Saint

    Funding of ME/CFS research in the UK

    Sly Saint, Feb 21, 2018 ... 2 3 4
    Replies:
    73
    Views:
    9,595
    Andy
    Oct 21, 2022
  6. Sly Saint

    Bing ME/CFS information

    Sly Saint, Oct 18, 2022
    Replies:
    0
    Views:
    880
    Sly Saint
    Oct 18, 2022
  7. RoseE

    M.E. and me (My Story as a Teen with ME/CFS) - Youtube Channel

    RoseE, Aug 18, 2022
    Replies:
    3
    Views:
    1,250
    Sly Saint
    Aug 19, 2022
  8. bobbler

    marketing I like for women's sport - could this sort of thing work for ME?

    bobbler, Aug 4, 2022
    Replies:
    0
    Views:
    1,090
    bobbler
    Aug 4, 2022
  9. Sly Saint

    Problematic training courses - please add

    Sly Saint, Jan 5, 2018 ... 2 3
    Replies:
    52
    Views:
    9,432
    Sly Saint
    Jul 7, 2022
  10. Sly Saint

    Off-Kilter Podcast: “The Long Haul”: Inside the Patient Advocacy Revolution of the COVID Era (Part 1 of an #ADA2022 Special)

    Sly Saint, Jul 2, 2022
    Replies:
    0
    Views:
    1,130
    Sly Saint
    Jul 2, 2022
  11. Andy

    Exploration of the idea of a register of patient advocates

    Andy, May 27, 2022 ... 2
    Replies:
    23
    Views:
    2,366
    MSEsperanza
    Jun 7, 2022
  12. Tara Green

    Help with Advocating - responding to claims that ME is a psychological illness

    Tara Green, May 25, 2022
    Replies:
    16
    Views:
    1,974
    Tara Green
    May 31, 2022
  13. Sly Saint

    USA: #MEAction: Email Doctor Unger about the Misinformation at CDC

    Sly Saint, May 28, 2022
    Replies:
    0
    Views:
    1,016
    Sly Saint
    May 28, 2022
  14. Andy

    UK: Priority Setting Partnership for ME/CFS

    Andy, Mar 10, 2020 ... 10 11 12
    Replies:
    232
    Views:
    29,667
    bobbler
    May 21, 2022
  15. Phoebe

    ‘descriptions: a patient-led description of ME, composed from the words of people with ME’, a found poem by Alec Finlay

    Phoebe, May 20, 2022
    Replies:
    0
    Views:
    1,353
    Phoebe
    May 20, 2022
  16. Andy

    Webinar: Challenging Disbelief and Disregard in relation to Medicine, Chronic Illness and Disability, 24th May 2022

    Andy, May 10, 2022
    Replies:
    1
    Views:
    1,095
    Arnie Pye
    May 10, 2022
  17. Wyva

    Help needed: Send messages to Hungarian pwME for my ME Awareness Day project

    Wyva, Apr 27, 2022 ... 2
    Replies:
    23
    Views:
    2,127
    Sarah
    May 8, 2022
  18. Andy

    [National Institute of Health] Community Advisory Committee – Guidelines for the Design of Clinical Studies in ME/CFS

    Andy, Apr 15, 2022
    Replies:
    3
    Views:
    1,460
    Samuel
    Apr 20, 2022
  19. FMMM1

    Lobbying European Community for funding for ME/CFS Research

    FMMM1, Jan 4, 2019
    Replies:
    8
    Views:
    1,849
    FMMM1
    Mar 31, 2022
  20. PeterW

    A Picture of_ME: media images of ME

    PeterW, Feb 16, 2022
    Replies:
    7
    Views:
    1,228
    Trish
    Feb 19, 2022
Showing threads 61 to 80 of 310

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