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General Advocacy Discussions
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Communications support: Graphics, writers, websites etc.
PeterW
,
Aug 26, 2021
Replies:
3
Views:
684
MSEsperanza
Aug 30, 2021
Yet another NHS reform !
CRG
,
Jul 14, 2021
Replies:
7
Views:
1,185
CRG
Sep 10, 2021
UK Action for ME - policies, actions and publications - discussion thread
Hutan
,
Jul 26, 2021
...
2
3
Replies:
55
Views:
3,692
NelliePledge
Sep 10, 2021
UK: National Institute of Health Research: Suggest a research topic
Andy
,
Sep 17, 2021
Replies:
1
Views:
680
Invisible Woman
Sep 17, 2021
BPS proponents don't respond well to criticism
Obermann
,
Aug 24, 2021
...
2
Replies:
26
Views:
2,773
MSEsperanza
Sep 20, 2021
Informed Consent
Sly Saint
,
Aug 31, 2021
...
2
Replies:
32
Views:
3,149
Jonathan Edwards
Oct 18, 2021
New Video: NICE pause ME/CFS guideline
Adam pwme
,
Oct 18, 2021
Replies:
13
Views:
1,618
Adam pwme
Oct 19, 2021
#MEawarenesshour every wednesday on twitter
ME/CFS Skeptic
,
Jan 4, 2020
...
2
Replies:
38
Views:
4,940
Adam pwme
Nov 3, 2021
Why doctors over estimate their skills
Keela Too
,
Dec 1, 2021
Replies:
6
Views:
1,119
DokaGirl
Dec 3, 2021
Chronic fatigue tests being sold online
Sly Saint
,
May 20, 2019
Replies:
16
Views:
1,930
Sly Saint
Dec 19, 2021
Harvard Health CFS website content
InitialConditions
,
Jul 5, 2020
Replies:
17
Views:
2,147
Amw66
Dec 21, 2021
Physician's Weekly: Why Patient Advocacy Is Important Without Being Hated, 2018, Girgis
Wyva
,
Jan 11, 2022
Replies:
3
Views:
838
alktipping
Jan 12, 2022
Politico: He Was Given 6 Months to Live. Then He Changed D.C. (Brian Wallach ALS)
leokitten
,
Jan 18, 2022
Replies:
14
Views:
1,690
Jaybee00
Feb 7, 2022
Contacting researchers
Wyva
,
Jan 31, 2022
Replies:
6
Views:
948
Wyva
Feb 7, 2022
Help Me Write A Quantum Leap Episode About ME
DigitalDrifter
,
Feb 11, 2022
Replies:
13
Views:
1,290
DigitalDrifter
Feb 18, 2022
My opinion on the topic “angry posts by patients on social media are harmful and something should be done about it”
Andy
,
Feb 23, 2022
Replies:
13
Views:
1,189
DigitalDrifter
Feb 23, 2022
Coining a term for being limited in your interrelated energy and time.
Arvo
,
Feb 11, 2022
...
2
Replies:
23
Views:
2,232
Arvo
Feb 25, 2022
Looking for authoritative explainer of cognitive dysfunction
Florence
,
Feb 16, 2022
Replies:
5
Views:
1,016
Hutan
Mar 11, 2022
A practical way to get more high quality research into ME/CFS and specialized care
Hoopoe
,
Mar 11, 2022
Replies:
1
Views:
967
Samuel
Mar 14, 2022
Freedom of Information UK
CRG
,
Apr 7, 2022
Replies:
0
Views:
831
CRG
Apr 7, 2022
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