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General Advocacy Discussions

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  1. Yessica

    Is it worth my effort to try to get changes (and guidelines that are needed made) of government guidelines for COVID?

    Yessica, Jul 11, 2020
    Replies:
    2
    Views:
    894
    Trish
    Jul 11, 2020
  2. Yessica

    Who makes and writes the CDC guidelines and who updates them?

    Yessica, Jul 10, 2020
    Replies:
    4
    Views:
    978
    Yessica
    Jul 11, 2020
  3. ScottTriGuy

    Institutions protecting perpetrators

    ScottTriGuy, Oct 19, 2018
    Replies:
    7
    Views:
    1,479
    Ebb Tide
    Jun 7, 2020
  4. Simone

    Etiology: graphic representations

    Simone, May 20, 2020
    Replies:
    12
    Views:
    1,352
    Simone
    May 21, 2020
  5. Andy

    Genetic and Rare Diseases Information Center: ME webpage

    Andy, Mar 2, 2019
    Replies:
    7
    Views:
    2,065
    Perrier
    Apr 20, 2020
  6. Sly Saint

    Trial By Error: A Long-Time Patient Reflects on a Stay-At-Home World 2 April 2020 By David Tuller, DrPH

    Sly Saint, Apr 3, 2020
    Replies:
    7
    Views:
    2,214
    TiredSam
    Apr 12, 2020
  7. shak8

    Pandemic: good time to write about ME to newspaper editors, opinion pages?

    shak8, Apr 7, 2020
    Replies:
    1
    Views:
    816
    Kitty
    Apr 7, 2020
  8. NelliePledge

    The Steph show channel 4 U.K.

    NelliePledge, Mar 29, 2020
    Replies:
    12
    Views:
    2,077
    MEMarge
    Mar 31, 2020
  9. Jaybee00

    Stop yelling out the window/ALS fundraising

    Jaybee00, Mar 26, 2020
    Replies:
    0
    Views:
    861
    Jaybee00
    Mar 26, 2020
  10. Invisible Woman

    What does having ME mean to you?

    Invisible Woman, Mar 2, 2020
    Replies:
    18
    Views:
    1,752
    alktipping
    Mar 3, 2020
  11. Dr Carrot

    How do we make sure ME prevelance numbers are as accurate as possible?

    Dr Carrot, Apr 21, 2018
    Replies:
    17
    Views:
    2,355
    Webdog
    Feb 13, 2020
  12. ME/CFS Skeptic

    ME Association staffing and structure

    ME/CFS Skeptic, Mar 20, 2019
    Replies:
    12
    Views:
    2,101
    Dx Revision Watch
    Feb 7, 2020
  13. Emily Taylor

    Final US Federal Budget Report: Victory! 6 Major Federal Wins for ME/CFS

    Emily Taylor, Jan 14, 2020
    Replies:
    8
    Views:
    2,610
    rvallee
    Feb 4, 2020
  14. JohnTheJack

    BMA presidential essay prize 2020

    JohnTheJack, Jan 8, 2020
    Replies:
    3
    Views:
    1,618
    Valerie Eliot Smith
    Jan 20, 2020
  15. Hoopoe

    Reflections on advocacy

    Hoopoe, Dec 15, 2019 ... 2
    Replies:
    27
    Views:
    3,021
    Hoopoe
    Dec 29, 2019
  16. Sly Saint

    Linda Tannenbaum Talks with Llewellyn King - Dec 2019

    Sly Saint, Dec 15, 2019
    Replies:
    1
    Views:
    1,233
    FMMM1
    Dec 23, 2019
  17. Hoopoe

    Why is ME/CFS so neglected?

    Hoopoe, Dec 19, 2019 ... 2
    Replies:
    23
    Views:
    2,804
    wastwater
    Dec 21, 2019
  18. rvallee

    Do we actually know if the NIH funding is being spent?

    rvallee, Oct 26, 2018
    Replies:
    16
    Views:
    2,197
    Wilhelmina Jenkins
    Dec 17, 2019
  19. rvallee

    Discussion of documentary: What about ME? (2016)

    rvallee, Dec 16, 2019
    Replies:
    2
    Views:
    1,411
    Kitty
    Dec 17, 2019
  20. Dx Revision Watch

    NICE Guideline [NG127]: Suspected neurological conditions: recognition and referral NICE guideline

    Dx Revision Watch, May 4, 2019
    Replies:
    4
    Views:
    1,610
    Dolphin
    Dec 3, 2019
Showing threads 101 to 120 of 208

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