Recent Activity
Activity stream for all registered members at Science for ME.
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NelliePledge liked RaviHVJ's post in the thread Anyone tried Lightning Process for Long Covid?.
To be fair, them including the quote about ‘anti recovery activists’ is probably more damning than anything they could have written....
May 21, 2024 at 11:59 AM -
Sean liked Caroline Struthers's post in the thread Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review.
Cochrane got a consultant (Scott Wayne, an expert in mediation) to help re-vamp their complaints procedure. With feedback from the...
May 21, 2024 at 11:58 AM -
NelliePledge liked Caroline Struthers's post in the thread Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review.
Cochrane got a consultant (Scott Wayne, an expert in mediation) to help re-vamp their complaints procedure. With feedback from the...
May 21, 2024 at 11:58 AM -
NelliePledge liked Sean's post in the thread Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review.
So when does this get sent to Cochrane? Or has that already happened, and we will just send an update at some point?
May 21, 2024 at 11:58 AM -
NelliePledge replied to the thread Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review.
Why have we changed the process :whistle:
May 21, 2024 at 11:57 AM -
RaviHVJ replied to the thread Anyone tried Lightning Process for Long Covid?.
To be fair, them including the quote about ‘anti recovery activists’ is probably more damning than anything they could have written....
May 21, 2024 at 11:57 AM -
NelliePledge liked Trish's post in the thread Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review.
In out latest letter to Cochrane about harms we also formally presented the petition, including the list of organisations supporting the...
May 21, 2024 at 11:55 AM -
NelliePledge liked Hutan's post in the thread Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review.
The committee sent a letter to Cochrane which you can find here. S4ME: 2023 Open Letter to Cochrane - request for action on the ME/CFS...
May 21, 2024 at 11:55 AM -
Yann04 liked ahimsa's post in the thread Preprint Epidemiology of Myalgic Encephalomyelitis among individuals with self-reported CFS in BC, Canada, and their health-related quality of life, 2024,Nacul.
You know, whenever I get that "How would you rate your health?" question it is hard for me to say "poor" even though I'm disabled. Part...
May 21, 2024 at 11:55 AM -
NelliePledge liked Yann04's post in the thread Anyone tried Lightning Process for Long Covid?.
It’s crazy to me that their reporting is more “balanced” on the scam of a treatment the lightning process is, than it was when there...
May 21, 2024 at 11:54 AM -
NelliePledge liked Arnie Pye's post in the thread Anyone tried Lightning Process for Long Covid?.
Quote from the link above with my emphasis : That word "activists" does more heavy lifting than any other word I know.
May 21, 2024 at 11:54 AM -
NelliePledge liked Dx Revision Watch's post in the thread Anyone tried Lightning Process for Long Covid?.
https://www.sayer.abel.co.uk/MESNORFOLK/LP.html This web page has been created as a place for people to record, in the public interest,...
May 21, 2024 at 11:54 AM -
NelliePledge liked Deanne NZ's post in the thread Anyone tried Lightning Process for Long Covid?.
A print "teaser" article has just appeared on the BBC website...
May 21, 2024 at 11:54 AM -
Yann04 replied to the thread Anyone tried Lightning Process for Long Covid?.
It’s crazy to me that their reporting is more “balanced” on the scam of a treatment the lightning process is, than it was when there...
May 21, 2024 at 11:53 AM -
RaviHVJ replied to the thread BBC Lightning Process exploits people.
I was very impressed by the article. It was stronger than what I'd expect from the BBC. It's quietly damning, which is always good for a...
May 21, 2024 at 11:51 AM
