Search results

This is not even theoretical on my part. As a software engineer there were definitely periods when I worked 12 hour shifts for many months in a row. Plus extra time on the weekend. I'm not recommending this kind of work schedule! I had a terrible work/life balance in my early twenties. But I...

I didn't feel bad about voting. I have not seen all the films but I have seen several - I think 5? I do record Independent Lens on my DVR regularly. Then I look at the description of the program, maybe watch a few minutes, and decide whether I want to watch the whole thing. My impression is...

True. I absolutely don't regret voting only for Unrest. I just thought it was funny that I was so excited that I missed those instructions completely!

I was so excited to vote that I only voted for Unrest. I just now noticed that you can vote for up to three movies, LOL!

Wow, I just voted and Unrest was in the lead with 713 votes. Second place was I Am Not Your Negro with 54 votes (which is also a great film, by the way!).

Sadly, if a long term disability (LTD) policy falls under ERISA law (and that includes most LTD policies that are provided by an employer) then the insurance company is protected from ever having to pay any damages. They don't even have to pay any interest even if it has taken 3-4 years before...

This is HUGE. For those outside the USA, the ERISA laws, at least the parts covering long term disability (LTD) insurance, are really messed up. So many folks with ME (and many other chronic illnesses) have been denied claims over the years. Getting an ERISA LTD claim approved is A LOT HARDER...

OMG, @Alvin - I just saw your "air mouse" and I can't stop laughing! :laugh::rofl::laugh::rofl:

I use my laptop in a recliner and this type of laptop desk works well: It has a "bean bag" like base that molds itself to your legs. It also insulates your legs from the heat of the laptop. I got mine from Ikea (https://www.ikea.com/us/en/catalog/products/70403507/) but there are other...

For me, the main reason talking face to face is how difficult it is to put information into words/sentences in real time. A secondary reason is that I don't absorb things verbally very well. I do much better with visual input, things written down. It's a bit easier to talk to my husband...

Thanks for your reply - makes sense! I meant to respond earlier but forgot. I think when I posted my earlier questions my foggy brain was conflating two issues - rest vs. sleep: I think pretty much every ME patient feels worse after exertion, right? So they would see a difference in symptoms...

You're welcome. I'm sending a pair of my shoes to Washington, DC today. Well, my husband is actually the one taking the box to the post office ... but I packed the box! :D I don't think it's too late for USA folks to send shoes to Washington, DC or other locations. Please check first. I'm...

At first, the absurdity of this answer had be me laughing out loud :laugh::rofl::laugh::rofl: But then I wondered, maybe there's some deeper message that I'm missing? Does this mean that some people with ME have the exact same level of bad symptoms whether they rest or not? Whether they sleep...

For anyone who wants to find out if there's a MillionsMissing event near them here's the link: http://millionsmissing.meaction.net/ Since this is the USA thread I tried to post a link just for the USA. But the website does not work that way. Once you get to the page you can filter by country...

That's a good thought, @Michelle Another idea is to use the #DisabledJoy hashtag in solidarity with other folks who have disabilities. I know it's not quite the same idea as being grateful. But it does fight against the incorrect stereotype that folks with ME are always combative and...

I hear ya, @hellytheelephant ! Illness onset Jan. 1990 at age 29 for me. Then it was five years before I was even diagnosed. So, yes, it does seem unreal that there has been so little research and so little is known about ME/CFS. In fact, most of the time my medical care is like that old...

What @Joh said! :D I really like the emphasis on a specific "ask" or demand for concrete action being included in these #MillionsMissing events or demonstrations. Here's an excerpt from the ME Action "getting started" webpage: Obviously any demands need to be tailored to the specific...

Since my previous message is so long I thought I'd add this "getting started" link :) http://millionsmissing.meaction.net/get-started/ It provides a better overview than I did!

@Mike Harley Congratulations!:emoji_blush: And another £1000 for research! :emoji_heart_eyes:

Hi folks, I just got off a planning call with ME Action volunteers about how to coordinate #MillionsMissing events planned for May 12th. I was encouraged to register an event with ME Action. I learned that even though all I am going to do for May 12th this year is take some photos and share...