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  1. BruceInOz

    Building an evidence base for management of severe ME (including sleep management)

    It is possible to do sleep studies at home. I don't know how reliable or intrusive they are. But a pilot study would be needed to check that the measurement process was not influencing outcomes as you say.
  2. BruceInOz

    Building an evidence base for management of severe ME (including sleep management)

    This is a very important point. The two domains (physical and cognitive) are definitely coupled so if you only measure one you will not get the true picture.
  3. BruceInOz

    NZ Listener - Ills thought out - Wilson 2019

    Fits perfectly. As soon as an observation is made, the cat is clearly either dead or alive, not both. But here, the author suffers from having never actually observed people with ME so, from their perspective, they can simultaneously be in either state.
  4. BruceInOz

    Do ME symptoms fit with the faulty energy metabolism hypothesis?

    How does this explain the cognitive symptoms? For example, if I'm doing basically ok but maybe a bit close to the top of the energy envelope and then encounter certain cognitive challenges (for example, searching for something in a cluttered drawer or trying to find the words to explain...
  5. BruceInOz

    Do ME symptoms fit with the faulty energy metabolism hypothesis?

    Me too. Although I would describe it more as mental activity makes my legs ache as if I had been running around on them all day (at least that is my memory of how it used to feel back when I was well).
  6. BruceInOz

    Epstein-Barr Vaccination could reduce risks of B-cell lymphoma, study suggests

    Must be hard to tease this out properly given that 95% of adults have been infected with EBV.
  7. BruceInOz

    Claim (PACE) ME/CFS cured by changing mind on way out HealthInsightUK Blog post by Jerome Burne (2019)

    Whenever I'm about to post anything with more formatting than plain text I click the "More Options..." button and then click "Preview..." to get a preview of how it will actually look. I've never embedded a twitter link (don't tweet) but I'm guessing this would let you see the magic before you post.
  8. BruceInOz

    Letter template for Australia’s election

    The correct answer may depend on the particular circumstances. Here, the current health minister (from the conservative side of politics, ironically called the Liberal party) has just announced AU$3 million in funding targeted for ME research. The funding was part of the last budget which was...
  9. BruceInOz

    Blog: 'Summary so far of "Something in the blood"' by Simon McGrath

    I think you are being generous Trish. A good homeopathic dilution is just water, no molecules of the active ingredient at all. From https://rationalwiki.org/wiki/Homeopathy
  10. BruceInOz

    Suddenly my head spins

    I was diagnosed with benign paroxysmal positional vertigo (BPPV) last year. The initial episode was rather scary since it came on suddenly and I had never had anything like it before. I was so dizzy and nauseous out of the blue that I felt I needed to get to A&E but couldn't be upright long...
  11. BruceInOz

    Parliament of Australia - petitions and questions

    It sounds like whoever drafted the minister's reply had been exposed to the false interpretation of the Dubbo study and stated it as fact.
  12. BruceInOz

    Australia’s Health Minister Greg Hunt announces $3m for medical research

    I really have no idea. But I think that this is a plausible speculation.
  13. BruceInOz

    Australia’s Health Minister Greg Hunt announces $3m for medical research

    I presume/hope that a commitment is being sought from the Labor party to match or better this. I am guessing minister Hunt's announcement won't be set in stone before the May election so may be overturned in the somewhat likely event that they lose. Getting Labor on board now seems vital.
  14. BruceInOz

    Response: Sharpe, Goldsmith and Chalder fail to restore confidence in the PACE trial findings

    If you declare the PACE trial inadmissable (because changing endpoints to make sure you get the right result is not science - as the authors have admitted they did in print) and use the published results from FINE rather than the unpublished adhoc results, there can barely be enough numbers left...
  15. BruceInOz

    Australia’s Health Minister Greg Hunt announces $3m for medical research

    First the Greens, now Liberals. Must be Labor's turn now.
  16. BruceInOz

    ME Australia’s submission to the National Health and Medical Research Council on their draft report

    I don't think this thread is members only is it? If you are concerned about someone quoting your post, isn't it a problem just having the post out there?
  17. BruceInOz

    Australian Greens party announce ME and CFS policy

    In reality, the probabality that the Greens will actually ever be in a position to implement this is close to zero. They currently have one member out of 150 in the lower house. Their best case scenario is holding the balance of power in a minority government situation that may give them more...
  18. BruceInOz

    Brian Hughes - If you spend 20 years gaslighting your patients, perhaps you should think twice before accusing *them* of trolling *you*

    Well, this thread has so far uncovered lots of evidence to support @Brian Hughes claim of gaslighting! Only fault is it's more like 30 years than 20.
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