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    Just Invisible: Medical Access Issues for Homebound/Bedridden People

    I think this is true in the whole so called first world where cost is always put first .until their is a major upheaval in the way medical systems work as in the realisation by everyone that industrialised medicine only works for the beancounters and administrators it grossly fails the patients...
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    Patient perspective series: My experience of chronic fatigue syndrome – People and pain

    trish you are a health care professional because you manage a chronic illness with a multitude of symptoms.
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    Predatory behavior runs rampant in Facebook’s addiction support groups

    it happens on health sites too . I have seen posts by people claiming to have been cured by the lightning process it is sickening how many people only see a way to make easy money out of other peoples suffering.
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    Petition: Review treatment of people with ME in Scotland

    good video shared to fb
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    News from Aotearoa/New Zealand and the Pacific Islands

    that is the best article I have read about m e .I have shared it on facebook it is refreshing to read an article that is so well written by a patient with m e without any referrals to the psychology bs we get in the English press .
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    UN Meeting on Human Rights in Mental Health: A Response

    the mention of psychosocial disabilities repeatedly should be a warning written large to everyone with a chronic illness because governments would like to wash their hands of any medical/benefits costs and consign everyone to this none medical diagnosis. once they have done this we can be...
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    Association of Depression and Anxiety Disorders With Autoimmune Thyroiditis - A Systematic Review and Meta-analysis, 2018, Siegmann et al

    if psychiatrists ruled out all so called mental health disorders because there are well known reasons for anxiety depression and even hallucinations auditory and visual that would put a lot of them out of work. hopefully medicine will eventually find the cause for each and every so called mental...
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    Opinion: Reproducibility failures are essential to scientific inquiry, Redish et al, 2018

    I remember from chemistry at school that although chemistry teachers did the same experiments with different classes they could never be certain of getting the same results 100% of the time to many variables .
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    Opioid makers' perks to docs tied to more prescriptions

    makes you wonder why many doctors in England either wont prescribe opiates or are trying very hard without even consulting their chronic pain patients to stop their prescriptions .I have heard this on f m sites.
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    How many hours of sleep a night do you need? - Now with Poll

    iff I am lucky I might get two hours of sleep before waking then take up to an hour to fall asleep again. my circadian clock is way out I can only get to sleep at 10/11 am and get up 5/6pm . never feels like a proper sleep should and I never remember dreaming during these broken sleeps . I think...
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    The Bristol Cable: #MillionsMissing: the campaign for ME equality

    the british media still won't call it the fraud that it so patently is but then all the people who openly speak about its failings/flaws will not call it a fraud either. very strange if drugs companies did this there would be prosecutions and huge legal suits for compensation considering the...
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    youtuber: Have you been misled...? // What is PACE? // Medical Scandal

    its nice that she shows not all people with chronic health problems are miserable and unapproachable , I would be a very bad advocate for us simply because I tend to be very angry swear often/way to often but this illness is way to hard to deal with without obnoxious people trying to control the...
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    BBC Newsbeat: M.E. And Me - documentary available from Tuesday 8th May, 6am

    thanks for your reply being middle aged now I have never watched anything on I player. very rarely watch television these days cognitive issues can make it very difficult as you probably know.
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    One side effect of being young, female and sick: People won’t believe you

    no shock whatsoever welcome to the rampant world of unrestrained greed if your not making money for someone then you are worthless and of course those who are making the money gaining power and political influence make sure that the idiots attack those less well of than themselves. this has gone...
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    BBC Newsbeat: M.E. And Me - documentary available from Tuesday 8th May, 6am

    does anyone think it strange to spend taxpayers money on a documentary type programme and then only put it out on an online platform . for those who do not know the bbc is funded by taxation through licensing.
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    BBC Newsbeat: M.E. And Me - documentary available from Tuesday 8th May, 6am

    it says bbc I player from 6 am is it really going to be broadcast to so few viewers . I am probably missing something no surprise there.
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    Guardian piece on ME by Nick Duerden, mentions PACE 'controversy', includes quote from Chalder. Bit of a nothing article.

    to me it came across as a dumbed down fluff piece to flog a poorly researched book . rather patronising of the guardian to infer their readership is full of uneducated or simple minded folk to lazy to google anything in depth for themselves. but then most newspapers seem to think their readers...
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