Nice to see them expressing enormous gratitude to those who reviewed the toolkit. Now that we've reviewed it I wonder if they'll be expressing the same enormous gratitude towards us? Unless "reviewing" in the AfME world just means nodding and saying "yes, that's great".
Well here's my take on VES's second blog.
It basicially consists of:
1. A friend told me that the PCC (which no longer exists) told him that ME patients were a nightmare.
That it? As a lawyer (who can't seem to stop herself from waving her credentials in our face at every opportunity), surely...
Aye :emoji_hand_splayed:.
Fabulous letter.
With regards to evidence, from their statement here:
https://www.actionforme.org.uk/news/pace-trial-and-behavioural-treatments-for-me/
So they claim that the therapies they recommend are evidence-based, but their only evidence seems to be "BACME...
Well I have now blasphemed openly so the atmosphere is decidedly frosty. I was half expecting to be purged, but they've just booked me again for the next semester. Must be less trouble than getting rid of me I suppose.
Looks like our positive couple gets around a bit:
https://www.ignatianspirituality.com/24807/why-gratitude
https://www.penderelstrust.org.uk/adviceEmployer.php
Still, no need to use a picture of a real M.E. sufferer, it's not as if AfME actually know any.
I think it's marvellous, I feel encouraged and supported to leave my sofa and show the world that with the right help and support I really can go for a long walk. Thank you AfME.
Apparently this is one of a series of events, here's the next one:
This event fits in with AfME's current position...
perpetuating factors—for practical management the most important factors are those that perpetuate the illness and consequently act as barriers to recovery, including the unmodifiable behaviour of Michael Sharpe and colleagues.
Here's a (rather long) interview of the authors of the hoax articles where they discuss the ethics of the hoax (apparently - haven't had time to watch it myself yet):
The pictures don't seem to fit the tone or subject of the article very well. 5 photographs (selfies - all labelled photo - Emma Owen) of her looking glamorous? Sipping a cocktail, in front of an expensive car, made up with a dog, on a balcony in an exotic location ...
AfME were present on this thread where I posted on 31st August 2018:
https://www.s4me.info/threads/action-for-me-the-pace-trial-and-behavioural-treatments-for-m-e-position-statement.5532/page-6#post-100457
And I've posted directly to AfME here on other threads on the same point previous to...
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