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    Researchers Question “Gold Standard” Status of CBT

    interesting, but not impactful - IAPT will roll out all the same....
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    ME Awareness Conference with Dr Amolak Bansal - Saturday 12 May 2018 2pm

    Any info coming out of this event?
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    Is it metabolic?

    Starvation induces a hypometabolic state - low T3 paper recently noted this , whilst linking to Naviaux's dauer paper. So mechanism may be similar.
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    Patients with Chronic Fatigue Syndrome needed for new study - Keele University UK

    Post on PR re this with some detail re lead researcher http://forums.phoenixrising.me/index.php?threads/keele-university-seeks-cfs-patients-for-new-study-–-lead-researcher-carolyn-chew-graham.59378/
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    UK CMRC 2018 Conference held September 19 & 20 at Bristol

    Was EC not the only speaker not to have their presentation on YouTube last year at CMRC? I could well be wrong as i was only dipping a toe into ME political waters then I seem to remember Dr Rowe' s POTS lecture highlighting the huge gulf in paediatric knowledge. Up til then children did not...
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    Rethinking the treatment of CFS — a reanalysis and evaluation of findings from a recent major trial of GET and CBT (2018) Wilshire et al.

    This is Mr Stone' s information based website http://www.neurosymptoms.org
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    Recommended by my vet

    Perhaps its the genetics - my daughter has genes that are different to " normal" for omega 3 and 6. If these are expressed then the ratio is well out of whack.
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    A unifying theory for cognitive abnormalities in functional neurological disorders, Fibromyalgia and CFS (2018), Mark J Edwards et al.

    The question is - is it contagious?
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    #MEAction: Four things you can do to advance the fight for health equality

    @andypants scottish petition is global
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    Blog: 'Postcards from the Fringe': Families give evidence about Named Persons [Scotland]

    Really ironic- when we had bullying issues and tried to get gp and cahmns to share concerns with school ( who really were not interested in addressing root cause) this could not be done due to " confidentiality". So only when it suits ....
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    World ME Alliance, was previously IAFME: International Alliance for ME

    Any insight @Dx Revision Watch ?
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    World ME Alliance, was previously IAFME: International Alliance for ME

    It looks a big bus -so who is driving it?
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    World ME Alliance, was previously IAFME: International Alliance for ME

    I think that may mean that their particular event under the banner had started.. like our ME Action event etc
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    Ideas For Marketing ME More Effectively...

    I don't think many of the figures would stand up to scrutiny - the 250,000 has been around for at least 10 years... From forums, I would agree re the 25% being questionable Perhaps a poll both here and on MEA website @Russell Fleming Our issues here are that you will simply fail to be diagnosed...
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    Millions Missing in Southampton - 12th May 2018

    Looked amazing and great awareness raising. I thought the reference to war graves was good too
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    Esther Crawley's contribution to #MEawarenessweek

    I am on another online mum' s forum. Smaller but some have had similar opinions and experiences. There are a few good stories, too where staff advise against doing too much too soon. It would seem to depend who you get ( no pun intended)
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    Schizophrenia Affects Your Body, Not Just Your Brain

    Maybe explains how high dose B3 ( niacin) helped treat schizophrenia prior to antipsychotics - it has anti inflammatory properties.
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    Patients with chronic fatigue syndrome do not score higher on the autism‐spectrum quotient than healthy controls, 2018, Bileviciute‐Ljungar et al

    From parents' forum there does seem to be some correlation , particularly high functioning asbergers. Whether that is higher than general population, or within other chronic illnesses, i don' t know. Adolescent females seem particularly affected and female ASD does seem subtly different. Rich...
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    Esther Crawley's contribution to #MEawarenessweek

    Can someone tweet back link to @Docsimsim and Vink' s take down of FITNET?
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    Consultation on the update to Developing NICE guidelines: the manual

    . Anyone available to go ?
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