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    BBC: Chronic fatigue syndrome treatment 'should be withdrawn'

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    BBC: Chronic fatigue syndrome treatment 'should be withdrawn'

    Is Lizxie the same girl interviewed with EC when lightening process trial was reported? I can' t remember the details, but it was a similar presentation of info..
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    BBC: Chronic fatigue syndrome treatment 'should be withdrawn'

    Is there a facebook page for radio 1 - comment or link to emma donohoe video?
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    BBC: Chronic fatigue syndrome treatment 'should be withdrawn'

    Prof Sharpe popped up at lunchtime with a soundbite to ensure that people can continue to benefit from GET as it works ....
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    ME Association - Forward ME – Meeting with Dr Diane O’Leary about possible WHO coding changes - 21 April 2018

    @Russell Fleming ,@Action for M.E. This gets more worrying..
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    A unifying theory for cognitive abnormalities in functional neurological disorders, Fibromyalgia and CFS (2018), Mark J Edwards et al.

    Seen in context with @Dx Revision Watch being " sacked" and IAPT roll outs, this is potentially more dangerous than would first appear
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    WHO ME/CFS coding - April to May 2018

    Given the lack of nous from Forward ME and the charities in getting to grips with the nature and implications of recoding , i have real concerns that there is noone to jump up and down for us, and the horrendous fiasco that Bob suffered, and its consequences will become commonplace. What is...
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    WHO ME/CFS coding - April to May 2018

    The King is dead, long live the king?
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    The ME Show

    Great programme. Tone and balance good - time flew in. I' m looking forward to episode 2. I will post link to family and friends Thank you
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    Metabolism and autoimmunity

    Thanks Trish - i can' t get my phone to cut and paste selective info
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    Metabolism and autoimmunity

    From Dr Mark Guthridge' s twitter feed. Currently used for MS, mechanism being unravelled Using metabolism to dampen autoimmune response http://science.sciencemag.org/content/360/6387/377
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    Blocking glucocorticoid receptor in GWI (Klimas at #MECFSConf18)

    I have not seen a paper published, but Dr Amalok Bansal had suggested in LiME conference in Sweden 2014, that glucocorticoid B receptor was affected in ME.
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    Updates on status of ICD-11 and changes to other classification and terminology systems

    What are channel 4 up to now that the Windrush scandal has broken - they seem to have a certain disrespect for authority - the greatest scandal of the 21st century looks set to widen to others...
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    Updates on status of ICD-11 and changes to other classification and terminology systems

    Thank you - an immense amount of work and careful attention to detail. It is both sad and concerning that the potential impacts of this, for many illnesses, seem to have bypassed both media and charities. The official language dosn' t help, but i feel it needs a bomb dropped soon to wake...
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    Reframing psychiatric/psychological illness

    We only have to look at Bob' s experience to appreciate the position people find themselves in. Unfortunately the bullshit brigade are coming to a place near you soon.....
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    AFME provide new self advocacy support material

    Brava !
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    Adolescent recovery

    Who knows ? That seems to be undefined.
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    inTune Choir is Going Blue for ME Awareness Day at Wheal Martyn, St Austell, Cornwall 3pm on Saturday May 12th

    In the words of my eldest - amazebols!
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    Reframing psychiatric/psychological illness

    It is the fact that dangerous bullshit seems to be positioning as the way forward and growing at the rate of a farm midden that worries me.
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    Reframing psychiatric/psychological illness

    From the blog article:- near intro "A position statement critiquing diagnostic frameworks entitled “Classification of behaviour and experience in relation to functional psychiatric diagnoses: Time for a Paradigm Shift (PDF)” was adopted by the Division of Clinical Psychology of the British...
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