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Your carers sound appallingly unprofessional, but I understand how it may not be possible (as a very sick person) to be able to pursue a formal complaint or even to be able to challenge these sort of personal judgments. This is why we desperately need appropriate and explicit NICE guidelines...

Hardly a new paper, but I can't see this paper as a title on any existing thread. It's interesting to read Wessely himself state that they found no evidence for CFS/ME patients having negative attitudes to psychiatry, nor for having a particular 'perfectionist personality': Sci-hub link...

Thank you for posting that - it is very useful information for members who can access the 200 listed referral agencies. It's a terrible situation in the UK that getting professional legal representation is a complete postcode lottery (since the removel of Legal Aid for benefit appeals and...

But mothers can have both autistic and non-autistic children (including having the non autistic child/children after the autistic one/ones). I am a case in point in that I have one (adult) child who had absolutely no autistic characterisitics as a child and one (adult) child who would have...

So, I'm presuming this service based trial was done here: http://www.srft.nhs.uk/about-us/depts/clinical-health-psychology/patients/about-our-service-cfs-me/ If you take a look at the 'books and website' tabs, you will see who's work they base their approach on. Edit: On reading the article...

The other problem is that GPs will get their information on (and understanding of) 'CFS/ME' from the patients they see most often in their consultations, and most of them are unlikely to ever see, much less manage long-term, a severe (or even moderate) ME patient. The highest proportion of...

I am not saying this with humourous intent: I still feel traumatised by my two previous experiences of NHS CBT therapists (neither of which were seen for 'ME-related CBT or GET', but rather after I had asked GPs for counselling to help me cope with extreme life circumstances/severe depression)...

The BMJ information looks like it may be significantly better, but a subscription is needed to view the complete text: https://bestpractice.bmj.com/topics/en-gb/277 If someone has an institutional login, this would be worth exploring in detail. I would have thought those on the NICE guideline...

As the GP training doesn't specifically cover CFS/ME and they won't have been taught it in medical school, then their knowledge is going to come from courses such as the RCGP CFS/ME one that's been discussed on other threads (and was mentioned in the ME parliamentary debate)...

I was being sarcastic when I wrote: 'I haven't read through it, but somewhere in it I presume it will say something like: For patients with 'medically unexplained symptoms', send them off for CBT and forget about them.' I probably should have used an emoji to show this.

This is the link to the latest UK General Practitioner curriculum: https://www.gmc-uk.org/-/media/documents/gp-curriculum-2019_pdf-79017777.pdf Just glancing through it, it doesn't cover specific medical conditions, presumably because all the ones a GP should be able to diagnose should have...

That's truly shocking.

Mike highlights in his blog posts that IAPT's definition of 'recovered' is clinically meaningless. He makes some suggestions for how 'recovery' should be properly evaluated, but of course these require suitably qualified therapists, whereas IAPT therapists are mostly 'Well-Being Practicioners'...

I didn't know anything about AfME before using this forum. Now (having learnt more about them) it seems clear to me that AfME do not want to be a charity specifically for ME sufferers, that is, for people with ME (including those diagnosed with ME/CFS or CFS) whose symptoms include 'post...

And not burn it!

I followed some of Mike's links in his IAPT section: http://www.cbtwatch.com/category/iapt/ I found this LSE report, which forms part of the history behind the claim that IAPT should either cost CCGs very little or become fully cost neutral...

Moderator note: Message copied from here https://www.s4me.info/threads/coming-soon-bbc-radio-4-investigation-into-iapt-sep-2019.11360/page-2#post-204268 I followed some of Mike's links in his IAPT section: http://www.cbtwatch.com/category/iapt/ I found this LSE report, which forms part of...

Yes, it was almost as if he was promoting the need for an expansion of IAPT, since IAPT is the only way left for patients in England with mild-moderate mental health conditions (that is those under primary, rather than secondary or tertiary care) to receive NHS pyschological therapies. The...

Well, the tobacco industry were finally exposed!

But even bracketing (leaving aside) the debate on mind, brain and body, we can make a useful distinction between a 'mental problem' and a 'mental health problem', within the context these terms are commonly used in everyday medical and health encounters. For example, nobody considers the...