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Why would any patients want Kate Kelland reporting on anything to do with CFS? edit: Not that I think something like this would make her any worse.

Looks like utter nonsense to me, but I'm no physicist!

Thanks to them for trying to improve things.

So they halved their target recruitment and gave themselves extra time in order to not be below target? [I've not checked those facts, just posting quickly off what was reported in this thread re recruitment]

Thanks for the discussion on this. Isn't that just saying that, in this reality, BDD is likely to cause serious problems for ME/CFS patients but in an alternative time-line they might not? UK medicine is going to go on blathering on about the need to take a sophisticated biopsychosocial...

If the research is rigorously conducted then it largely doesn't matter what the underlying model is. I think it's worth focussing on the methods and not worrying too much about the model. High quality research should eventually lead to more accurate models. Having said that, some of the...

Thanks - here you go: Also relevant:

I've only just read this now - thanks to Tuller and to all the signatories for raising these concerns.

This is what they say about the changes to 2: It sounds like they completely changed it from something that provided useful information about the risk of bias to something that limits assessment to only a small sub-section of the reasons for concern about trial design increasing the risk of...

I don't remember that. Can you remember where that was?

From their appendix: That makes it easier to spin results.

Does this seem to make it easier to allow the sort of outcome switching seen in PACE? Seems that they wanted to make it easier to class trials as having a low risk of bias because so long as a trial is randomised it is good:

Has anyone let Tom Chivers know about this on twitter?

Helen Dawes was also involved in this: https://www.meassociation.org.uk/2019/04/forward-me-and-oxford-brookes-university-announce-results-of-patient-survey-on-cbt-and-get-in-me-cfs-03-april-2019/ tbh, I'm going to be a bit concerned about anything involving RCP (or AfME).

Why do I suspect that the NHS would rather give money to a CBT therapist than to giving me a break?

Every time this thread is bumped I feel nervous.

I think that things were steadily getting worse for them then... the last couple of years they've realised that they can still get away with ignoring the valid concerns about their work and focussing on handful of patients who say stupid things. They've somehow been able to act as if the null...

How can you still sound so confident about that at this point?!

I'm getting crowd noise... that progress?

I think that Myhill's advocacy efforts have been unhelpful. If we want to challenge junk-science like PACE we can't do it while promoting 'treatments' with an even weaker evidence base without looking unreasonable.