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  1. Skycloud

    Relinquishing Control in Health Care | Dr Laura Marshall-Andrews & Chris Dance | TEDxBrighton

    I was very surprised to learn that there was a GP practice like this (I was less surprised that it’s in Brighton). How do they get NHS funding for this? (rhetorical q) I can’t see that they are able to justify this with evidence of improvement in anyone’s medical condition, beyond subjective...
  2. Skycloud

    House built on old golf course - yes or no ?

    I'll be very impressed if you can get your two little dogs to do their business into a condom. Do you want to edit? :laugh: Decluttering takes a lot of energy - it's good that you're making the headway you are with it. With a condo you'll have to pay ongoing maintainance fees that you don't...
  3. Skycloud

    Relinquishing Control in Health Care | Dr Laura Marshall-Andrews & Chris Dance | TEDxBrighton

    This was sent to me by someone who is a patient at this GP surgery in Brighton, UK. They are chronically ill and significantly disabled with complex health needs which are not all met satisfactorily by conventional medicine. They are extremely grateful for the combination of conventional and...
  4. Skycloud

    Relinquishing Control in Health Care | Dr Laura Marshall-Andrews & Chris Dance | TEDxBrighton

  5. Skycloud

    Action for ME - New sponsor - The Haywoods group

    I live in a farce. This is the third time I've wanted to say that today reading on this forum, and now I'm saying it. eta - minus the swearing
  6. Skycloud

    UK House of Lords/ House of Commons Questions

    So we don't know if her question is ignorant or fiendishly clever :laugh: I hope she responds to the emails, thanks to those that sent them
  7. Skycloud

    Fructan, Rather Than Gluten, Induces Symptoms in Patients With Self-Reported Non-Celiac Gluten Sensitivity

    Was alerted to this by Jen Brea tweet. My excuses for not trying fodmap, or at least fructan free, diet are dwindling. Would appreciate feedback on the paper
  8. Skycloud

    Fructan, Rather Than Gluten, Induces Symptoms in Patients With Self-Reported Non-Celiac Gluten Sensitivity

    Fructan, Rather Than Gluten, Induces Symptoms in Patients With Self-Reported Non-Celiac Gluten Sensitivity Gry I. Skodje et al Gastroentorology February 2018Volume 154, Issue 3, Pages 529–539.e2 http://www.gastrojournal.org/article/S0016-5085(17)36302-3/fulltext
  9. Skycloud

    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    I want to see this change, or I want funding for these groups not CMRC. CMRC have much to prove
  10. Skycloud

    ME item on BBC Radio Lincolnshire

    http://www.bbc.co.uk/programmes/p05x8dbm#playt=02h10m30s (Direct link) From yesterday Features a pwme, and Charles Shepherd. Unrest clip and mention of Q&A in Lincoln(?) Haven't listened to it all as v foggy Couldn't see another thread
  11. Skycloud

    David Tuller - Trial By Error: News About My Plans

    Relieved. You're worth every penny, David.
  12. Skycloud

    Depersonalization Anyone, Or Am I Crazy?

    I can relate to some of what you write, but pem'd and brain fog :hug: eta - depersonlisation particularly during bereavement
  13. Skycloud

    My letter to the CDC concerning Kaiser Permanente still recommending GET

    Like a (Web)dog with a bone..:thumbup:
  14. Skycloud

    House built on old golf course - yes or no ?

    My take on stairs : My previous home had 2 flights of stairs - we moved specifically to reduce the stairs, number of rooms and floor area because of my ME. Valentijn's suggestion of stair lifts is a good one, but personally I would only install in a house I already lived in, to avoid moving. I...
  15. Skycloud

    Celebrities with M.E | WORLDS HOTTEST PEPPER video

    I've liked your post @Webdog, but what I really meant was a cringe and a sharp intake of breath.
  16. Skycloud

    Celebrities with M.E | WORLDS HOTTEST PEPPER video

    What else does a pepper have to do before it's safe from being eaten?! Um..hope it was worth it
  17. Skycloud

    My ME story on BBC Radio Jersey

    I thought it was a very good programme pitched well for the audience and time of day, but still referencing really important issues (albeit briefly, but understandably so in context) such as the awful situation re: children, and also GET harms generally. Two uses of the word 'scandal' with...
  18. Skycloud

    The Inside Story Of How An Ivy League Food Scientist Turned Shoddy Data Into Viral Studies (Brian Wansink, Cornell)

    Good point. I suspect I wouldn't have made that comment if the research hadn't been about subsidised pizza eating.
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