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  1. Sean

    Patients with severe ME/CFS need hope and expert multidisciplinary care, 2025, Miller et al

    Using 'fatigue' in the name is always major red flag. This. So next time she needs major surgery she will be happy to forgo anaesthetic? The fact that pain takes place in the brain does not make it something that can be arbitrarily suppressed or wished away. –––––– I am not sure this piece...
  2. Sean

    Patients with severe ME/CFS need hope and expert multidisciplinary care, 2025, Miller et al

    When you look up incompetence, dishonesty, shamelessness, hubris, exploitation, cruelty, and abject cowardice in the dictionary it says "See British medical establishment on ME/CFS".
  3. Sean

    News from the USA, United States of America

    Why do I not feel reassured?
  4. Sean

    E-readers (Kindle, etc.)

    Not always, but in general links can have everything from the question mark* on removed, without affecting their function. *Including the question mark.
  5. Sean

    UK House of Lords/ House of Commons - relevant people and questions

    What 'treatment'? Have you ever considered funding a robust and competent medical research programme?
  6. Sean

    Cluster and survival analysis of UK biobank data reveals associations between physical multimorbidity clusters and subsequent depression 2025 DeLong+

    Conclusions We show that certain groups of physical multimorbidity may be associated with a higher risk of subsequent depression. However, our findings invite further investigation into other factors, such as social considerations, which may link physical multimorbidity with depression. Nice to...
  7. Sean

    News from India

    most evidence supporting cognitive behavioural therapy (CBT) for chronic fatigue syndrome (CFS) comes from randomised controlled trials Fail right there.
  8. Sean

    Psychology Today: In Search of a Coherent Understanding of ME/CFS and Long Covid, Jake Hollis

    this hyper-vigilant state Same old, same old.
  9. Sean

    Long Covid Symptom Clusters, Correlates and Predictors in a Highly Vaccinated Australian Population in 2023, 2025, Tawfiq+

    The real take away message is that the major risk factor is extremely severe acute Covid infection.
  10. Sean

    Sociodemographic & psychosocial correlates of fatigue & chronic fatigue: A cross-sectional study from a South East London community survey, 2025,Zhang

    Self-reported fatigue and/or chronic fatigue was determined using the Chalder fatigue scale. Stopped there. Seriously. Subsequent comments from members simply confirmed that choice. At some point – and I think it is way past that point now – ignorance about the problems with studies like...
  11. Sean

    Pill / tablet cutter

    Check if the pills you are splitting are enteric coated to protect the contents against stomach acid. If they are then you should repackage the split pill into an enteric gelatine capsule. You can can buy them easily enough on eBay, chemists/pharmacists, etc. Look for the white ones, not the...
  12. Sean

    Two Households, Both Alike in Indignity: An Interview with Anne Ursu (Literary Hub)

    The idea that you could just become completely disabled out of the blue with something no one understands or can treat is a truth unpleasant for people to grapple with. And terrifying, which it is.
  13. Sean

    Useful arguments regarding the evidence provided by psychological and biomedical ME research?

    it is the subjective patient perspective alone that counts. Rubbish.
  14. Sean

    Multicentre retrospective detection of nailfold videocapillaroscopy abnormalities in long covid patients, 2025, Ginaldi et al.

    They look good, @forestglip. IIRC, formal medical photography uses standardised lighting, backgrounds, colour settings, perspectives, etc. May not need to go all the way, but do need to standardise variables like lighting, framing, size and resolution of image, etc, including a reference scale...
  15. Sean

    Oslo Chronic Fatigue Network

    Correct. Just as there is nothing inherently wrong with radiotherapy, antibiotics, or blood-letting. But there is a huge problem when any therapy is used inappropriately or incorrectly.
  16. Sean

    Research news from Bhupesh Prusty

    The molecular signature between ME/CFS and long COVID can’t be compared easily as majority of the ME/CFS patients accumulate secondary biological features over time. It seems that how the body adopts to the stress of the disease over time makes it different. I assume he means 'adapts'? It...
  17. Sean

    Warning over patients left on antidepressants for decades

    ‘Treatment which involves some social engagement, like group counselling or therapy, would be great for these patients. It is telling that when suggesting social engagement all she can come up with is formalised 'therapy'. Not construct a society that helps the elderly (and everybody else) find...
  18. Sean

    UK - NIHR Call for research on Virtual Wards, 2025

    I thought it had been long accepted that getting a patient back to their normal home environment and daily routine, as soon as medically safe to do so, was optimal in almost all cases, and certainly what patients want.
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