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A standard of 50m gain over 6 weeks rehab is pathetic. Either this is a fundamentally different form of deconditioning being experienced by patients, which would require a fundamentally different approach. Or there is no significant deconditioning to reverse.

Good in principle, but not always in practice.

I see what you did there. :thumbup:

Indeed. It has been noted for decades, including in the formal literature IIRC, that one way to differentiate ME/CFS from depression is to ask a patient what they would do if they were suddenly cured. ME/CFS patients typically have a long list of things they would like to do. Depressive...

Same here. More one of the earliest noticeable consequences than a cause.

To continue attempting a task, however imperfectly, and at high effort cost, requires high motivation and intention. And to decline to do so may well be the only rational choice. But no, the authors have to use prejudicial words like apathy, and lack of interest and enthusiasm. Really, they...

They reported more severe physical symptoms, elevated psychological distress and reduced functioning than those not meeting the criteria. Which is exactly what you would see in patients with unresolved, disabling, and horrible physical symptoms. It is circular definitional nonsense. Just...

Negative association between these regions in our findings substantiate the presence of apathy in pwLC, i.e. a lack of interest and enthusiasm towards solving the energy-demanding cognitive exercise. Which is exactly what you would expect to see in people who cannot do those task due to...

Yeah, why was Wessely even allowed to see the article before going public, let alone 'review' it? Do we have that right for any article he writes about us?

DARVO, par exellence. Way too many fingers in way too many pies. A stark warning about why power needs to be limited.

With friends like these... :mad:

Chronic fatigue is a symptom in literally hundreds of unrelated conditions, from minor and either self-resolving or easily treated/managed, through to major and life threatening. On its own the symptom tells us very little. It needs substantial context and history to make meaningful clinical...

I look forward to the day Wessely is no longer in power and those within the profession can speak more freely about his behind the scenes behaviour. I do not expect the stories to be particularly flattering.

The single most valuable resource in the clinical encounter is not knowledge, training, experience, time, treatments, or even compassion. They are very important, of course. Not downplaying them at all. But what is most fundamental of all is trust. Lose that and the rest doesn't matter. That...

he he :devilish:

Fragile little snowflake, isn't he. He does have a history of threatening litigation against his critics. 17 pages? Sound like a bit of an emotional over reaction to me. Sort of thing that is sometimes held up as evidence of serious psychopathology when it comes from a desperate patient. He'd...

Thanks for this, @Adam pwme . Good to have it laid out clearly. Some points from memory, will need checking: Wessely has been either on the Science Media Centre's board of governors (or whatever they are called), or a medical adviser to it, since its inception. Even if he ever held no formal...

Personally I wouldn't trust anything from Musk and Grok. Besides, Grok and other AIs are basically just thieving the work from Wikipedia, PubMed, et al. There will be nothing original or of added value in it whatsoever.

Sadly, it is convincing the bean counters about the real economic costs of LC (& ME/CFS, etc) that is likely to be where the real catalyst to take it all seriously actually comes from. So, while they deserve their share of criticism generally, they will probably be some of our best allies...

I agree that in relation to the symptom of fatigue that the criteria used in ME/CFS studies are not so relevant, for the reasons listed by others. IIRC, going back to at least the Holmes 1988 CFS criteria the symptom chronic fatigue has always been explicitly differentiated from chronic fatigue...