New Video ME/CFS Scandal Explainer

another great video.

My only observation is no mention of Esther Crawley; particularly in relation to 'harassment', and there being no evidence of it following FOI to Bristol, and the supposed cease and desist letter to DT, and who can forget the TEDx talk (I think it was that one anyway) where she used the mock threatening letter and made out it had been sent to her.
 
Sly Saint said:
another great video.

My only observation is no mention of Esther Crawley; particularly in relation to 'harassment', and there being no evidence of it following FOI to Bristol, and the supposed cease and desist letter to DT, and who can forget the TEDx talk (I think it was that one anyway) where she used the mock threatening letter and made out it had been sent to her.
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thanks Sly. Yeah unfortunately I felt the video was too long at 27 minutes so I tried cutting it down to a minimum. That was On my list to include originally though.
 
Nice work. Thanks. :thumbup:

Do agree with the comments about the unhelpfulness of citing the WHO classification as neurological. But it does not alter the basic facts you have presented about how the mishandling of ME/CFS has been completely botched by the psychosomatic club, to the point of lethal abuse, and the ferocious ongoing resistance by them to acknowledging that, withdrawing their claim, and facing appropriate consequences for the human carnage left in the wake of their gross failure.
 
The video is just about to pass 200,000 views on YouTube, so I’ve written a follow-up article. It’s mainly things I wasn’t able to include along with a few developments since. I have tried to focus on government, media and the insurance industry as well as including a few more patient accounts.

Before posting it publicly, I’d appreciate a quick sense check to flag any factual errors. I’ve attached a PDF of the draft below.

Note: Some images haven’t copied across into the PDF, which is why there are a few gaps.

Many thanks.
 

Attachments

ME/CFS Science Blog said:
Congrats Adam on reaching so many views!

Was only able to skim your text but it looked good. It's a bit long for newbies so perhaps some events (regarding the PACE trial for example) could be left out. On the other hand, it could also be useful for newcomers to have a comprehensive overview of what happened.
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Thanks for taking a look, much appreciated.

Yeah, that’s the idea: it’s not really intended as an introduction for new folk, that’s what the explainer video is for. This is for people who’ve already watched it and want more detail that’s easy to access all in one place, they can use the links to references as well to dig even deeper.
 
Thanks for this, @Adam pwme . Good to have it laid out clearly.

Some points from memory, will need checking:

Wessely has been either on the Science Media Centre's board of governors (or whatever they are called), or a medical adviser to it, since its inception. Even if he ever held no formal role he clearly has had and continues to have a major informal influence over its views and positions.

He played a role in creating the John Maddox award.

Wessely not only received the John Maddox award, he was given the inaugural award, usually regarded as a particularly prestigious honour. The prize was also later awarded to Esther Crawley.
 
Sean said:
Thanks for this, @Adam pwme . Good to have it laid out clearly.

Some points from memory, will need checking:

Wessely has been either on the Science Media Centre's board of governors (or whatever they are called), or a medical adviser to it, since its inception. Even if he ever held no formal role he clearly has had and continues to have a major informal influence over its views and positions.

He played a role in creating the John Maddox award.

Wessely not only received the John Maddox award, he was given the inaugural award, usually regarded as a particularly prestigious honour. The prize was also later awarded to Esther Crawley.
Click to expand...
Thanks, Sean,

That’s really helpful. I’ll look into that.
 
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