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  1. Estherbot

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    Michael Sharpe breaks his retirement promise on ME/CFS and returns with this monstrosity, a blog for the BMJ (British Medical Journal) He says ME/CFS is an illness but not a disease... Mind, Medicine and Morals: A Tale of Two Illnesses...
  2. Estherbot

    Presidential election RCGP

    As you say, your experience of the RCP, not RCGP :) I'll check with my contact who is a member of the RCGP.
  3. Estherbot

    Presidential election RCGP

    @Jonathan Edwards I'm aware of your views on the Royal Colleges.:) We're not going to agree on this.... Your scepticism is not going to put me off. It won't stop me emailing the candidates with the same questions & publish the answers.(in the style of @dave30th ) There is also likely to be a...
  4. Estherbot

    Presidential election RCGP

    The election came to my attention via a RT from GP Rangan Chatterjee on Twitter
  5. Estherbot

    Presidential election RCGP

    The 7 candidates are Professor Rodger Charlton: Professor of Undergraduate Primary Care at the University of Leicester and GP partner and trainer in Solihull Dr John Chisholm: RCGP nationally-elected Council Member, Deputy Chair of the RCGP Trustee Board and Vice President of the BMA Dr...
  6. Estherbot

    Presidential election RCGP

    The Royal College of General Practioners (RCGP) is having its Presidential election soon. https://www.rcgp.org.uk/about-us/news/2019/may/rcgp-announces-seven-candidates-for-college-president.aspx There are 7 candidates... Could we canvas & lobby the the candidates for their views on matters...
  7. Estherbot

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    Why has Imperial Lord Wessely re-appeared on the ME scene? Thank @dave30th & Keith Geraghty
  8. Estherbot

    #MEAction: "Unseen: Black people living with ME"

    @Andy & @adambeyoncelowe We have different opinions where priorities lie. I'll stop there because I have to deal with the DWP, ensuring I have enough to live on is my priority for today. Have a weekend everyone. :)
  9. Estherbot

    #MEAction: "Unseen: Black people living with ME"

    I agree illness is not discriminatory. A major problem with with identity politics is that is EXCLUSIVE and not very INCLUSiVE. The people we really need to hear from are those who lost their jobs, their jobs, their partners. The people most affected by illness and its consequences are the...
  10. Estherbot

    Claire Fox (Fiona's sister)

    This popped up on my social media regarding Claire Fox today
  11. Estherbot

    #MEAction: "Unseen: Black people living with ME"

    I brought up the identity politics issue not because I disagree with the article, it's well written. It would be good to have a debate on whether the identity politics approach is appropriate for ME Identity politics is an EXTREMELY controversial area and has a number of risks which should be...
  12. Estherbot

    #MEAction: "Unseen: Black people living with ME"

    The toxic masculinity piece was rather odd. The individual seemed to suffer from self loathing and low self esteem.
  13. Estherbot

    #MEAction: "Unseen: Black people living with ME"

    @EspeMor MEAction are very keen on identity politics. This is a big thing in the US, have the ME Action also considered the downsides?
  14. Estherbot

    Claire Fox (Fiona's sister)

    Over the years a few journalists have looked into the SMC, the history of the Foxes and the targeting of environmentalists by the SMC. These include Nick Cohen & George Monbiot of the Guardian/Observer. I have reached out to both about Claire Fox and her MEP candidacy in the hope I can bring up...
  15. Estherbot

    Claire Fox (Fiona's sister)

    You may be aware that the head of the Science Media Centre is Fiona Fox. Her sister is Claire Fox who recently approved her support of the lovely Michael Sharpe and the SMC. Well, the ex communinist is now standing an an MEP for Nigel Farage's new Brexit party...
  16. Estherbot

    BBC News website: 'Rabbits gave me a reason to live'

    Esther Crawley & Trudie Chaldee are working with Ms Bramley to develop a new rabbit based therapy.
  17. Estherbot

    ACT UP documentary, United in Anger, 2012

    Was David Tuller involved in ACT UP?
  18. Estherbot

    ACT UP documentary, United in Anger, 2012

    Additionally some interesting graphics are featured in the programme. The website below features some of the graphics https://www.icp.org/browse/archive/collections/aids-graphics-selections
  19. Estherbot

    ACT UP documentary, United in Anger, 2012

    You may recall when ME Action Network started there were mentions of ACT UP. This was the campaign in the 1980s by the LGBT community to get more research into AIDS (mainly in the US) There was a documentary made around 2012 called United in Anger and it's available on YouTube. The programme...
  20. Estherbot

    Blog: Occupy ME, "I Want To Believe Dr. Collins, But I Don’t"

    Let me play devil's advocate and try to think like the NIH Every patient group wants more $$$$ for its illness There are lots of horrible illnesses out there Is there a chance of big breakthrough investing in ME soon? (ie not in 50 years) We're still very much in the exploratory stage of ME...
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