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No, the International Criteria for ME doesn’t specify 6 months before meeting the criteria. It’s referred to as the acute phase. I was diagnosed with ME after 4 months, for example.

The Minister’s response was predictable and reasonable, of course a government department will follow government guidelines. Here’s more on Emerge and ME Australia’s recent meeting (which I participated in) with the NDIA where permanency was discussed...

@rvallee The Mason Foundation has funded some shockers of studies, perhaps you are thinking of them? (Including some I’ve started petitions asking them to stop funding.) You are right about the Xbox study...

Here’s Australia’s government spending @rogerblack: A prospective study of the psychiatric & medical characteristics of post-infective fatigue & chronic fatigue syndrome’, (simplified title “Do some chronic fatigue states result directly from infectious illnesses?”), led by psychiatrist Prof...

@rvallee which is the foundation that does this? If you’d like to ask them questions and write about it for ME Australia, I’m sure there would be a lot of interest! Maybe even change things...

Dr Elisha Josev’s presentation was not streamed but if you are interested, this is the study she spoke about: https://meaustralia.net/2016/03/03/australian-research-into-mecfs-in-adolescents-ccc/ Hopefully it will be published soon, with reviewers at the moment I’m told.

This was one of the things ME Australia requested in our meetings with Minister Hunt, and he agreed to. While we were disappointed he wasn’t there in person, it was good he appeared by video.

I understand he was, he did Alison Hunter’s autopsy: https://www.ncbi.nlm.nih.gov/pubmed/27091026/ Professor Barrie Marmion founded the Adelaide Q-fever Research Group in 1980 and developed the highly effective Q-fever vaccine prophylaxis programs with CSL Ltd and State Health Departments...

Yes, good questions, the producers were receptive to being briefed on what’s happened in Australia recently, which always helps.

Go @ahimsa! I agree with @Peter Trewhitt, it is heartening to see this happening in other countries. I’m full of admiration for the people calling and visiting. For the last few years I met with lots of politicians and it is seriously hard work and extremely draining, even with lots of help.

The Mason Foundation are offering $1m over 5 years for a biobank or patient registry. The Mason Foundation are one of the biggest funders of Australian ME and CFS research, funding work at Griffith, ANU, Melbourne but also Lloyd’s GET/CBT training modules and dodgy Xbox studies. The Mason...

Here’s an article on the Greens’ policy announcement and details of their history of supporting people with ME and CFS in Australia: https://meaustralia.net/2019/03/31/greens-announce-me-and-cfs-policy/

We met with senior executives from the National Disability Insurance Agency, who administer the NDIS. Here’s what happened in the meeting: https://meaustralia.net/2019/03/30/disability-agency-consults-on-me-and-cfs/

No, it’s real, not an election promise!

Here’s the response from Dr Chris Armstrong and Prof Paul Fisher, who came to meetings with Minister Hunt about the funding, and Christine Hunter who has lobbied politicians for decades (as well as raising funds for research, organised conferences and more)...

@hixxy There is a danger of that and we can see UNSW gearing up, releasing a review recently calling for more biopsychosocial studies into ‘mecfs’ (although they don’t use the Canadian Consensus Criteria).

Here’s the link to the media release online: http://www.health.gov.au/internet/ministers/publishing.nsf/Content/health-mediarel-yr2019-hunt051.htm

Health Minister Greg Hunt announces $3 million for biomedical research funding for chronic fatigue syndrome!

I asked Prof Broadbent about the pilot and her views on the PACE trial: https://meaustralia.net/2016/10/07/aquatic-therapy-study-at-southern-cross-university/ After the pilot, she updated me on results and John Muir wrote a thorough, informed response...

It was intentional to include that figure in this draft report to government. The current Australian definition of chronic fatigue syndrome describes it as on ‘a fatigue spectrum’ and not a distinct disease so that’s why they’ve included this about 99% recovery in this report. (Australian CFS...