Search results

@Sly Saint I never got a response...

@Sly Saint I'll ask :)

Interestingly I have come to the exact opposite conclusion. I don't think we have ever put that responsibility on governments, we've supported one another and fundraised the little bits that we can amongst ourselves for the past 50 years and never had a grassroots movement that puts continual...

I see Adam has already posted the updated briefing (which I'm also much happier with), this short article from MEAction about the process of revising it is now up on the website too: https://www.meaction.net/2018/06/14/read-the-new-parliamentary-briefing/

@MsUnderstood definitely possible to donate to the indiegogo without a perk. Just click 'back it' and type in amount, and you can choose not to have your name put up publicly too :)

Not sure if this was noticed and discussed when it came out but the IAPT Manual links to this: NATIONAL CURRICULUM FOR CBT IN THE CONTEXT OF LONG TERM PERSISTENT AND DISTRESSING HEALTH CONDITIONS Version 2.0 June 2017 Which includes a unit on CFS/ME and these under "Competences to be...

From 13:30 - 16:30. Hopefully will be broadcast live. I think this precludes a summer House of Commoms debate, but not one in the Autumn. May possibly even help get us an Autumn HoC debate as government response can only be unsatisfactory. Should get a lot more on the record though :)

Westminster Hall debate. 3 hours, 1:30-4:30, on 21st June. #MEAction announcement here Feeling pretty pleased with this, will get a lot more said in 3 hours, can go into much more detail. And @Stewart thank you for explaining more about what Westminster Hall debates are and their origins...

@Binkie4 Yeah I'd also like to know more about parliamentary process, and do agree about momentum being vital. Definitely not set on my theory! Hope you have a great holiday.

Think the woman could be Kerry McCarthy (Bristol East), but don't quote me on that! I think the final male on your list is Alex Chalk (Cheltenham). Not sure who the welsh guy is. @Binkie4 True, Carol did say her preference would be a main chamber debate. Then also said a Westminster Hall debate...

Appears Carol and others have accepted offer of another Westminster hall debate, but this time lasting 3 hours, with the possibility of a commons debate in the autumn. Not sure if this is a final decision. Generally thought the MPs spoke well, and backbench committee appeared to want to...

Just watched it here: https://www.parliamentlive.tv/Event/Index/50fb53f3-c6ea-4848-8e5d-c00d6a52f005 She was first application so started at 14:30. Looks like you can still watch.

I struggle with this too, and do use earplugs and Bose earphones. But ear defenders are still the most helpful for me. I don't need continuous protection, but always keep the defenders on me just in case, as they are so easy to quickly put on. They have also enabled me to spend time with windows...

Yes I would find this pretty concerning..

The MRC has had a highlight notice for ME up since 2011, yet funding levels are still stagnant despite this open door. The CMRC has so far supported two bids relating to MEGA, both of which have failed suggesting a change of strategy is needed as we sufferers have so little time. A purpose of...

It also acknowledges the detrimental effect of PACE trial, which is pretty darn important. Ultimately I don't think this will get a debate, edms very rarely do. But it's about keeping this issue on your MPs radar. If something is a one off clickbait thing MPs can ignore pretty easily, but if...

This is what I now realise happened to me. By professionals who were very nice and I believe, in some cases at least, genuinely trying to help. It wasn't outright, I was never told "it's all in your head" in those or equivalent words. Just gently told that pain after exertion (e.g. walking to...

Please help us share this as widely as possible. Sheffield #MillionsMissing 2 min film. Edited to add correct video :facepalm:

Here's an article on Sheffield's event yesterday. Glad you found the live stream video. Suggest following @MEActNet @MEActnetUK @MEActNetScot @millmissmanc @MMissingAus and @jenbrea on Twitter They'll lead you to other interesting tweets. Sheffield will keep tweeting from @sheffieldmefm...

#MillionsMissing Sheffield 10am-6pm Friday May 11th, outside Mark's and Spencer on Fargate, Sheffield. 12:30pm Speakers and Performances Speakers include children's author Berlie Doherty reading words written by Merryn Crofts before she died, and a poem by a local sufferer. As well as other...