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    Reports from participants in GET and CBT trials

    I remember a cryptic comment from last year re the FOI requests to the effect that Peter White was handling the same dataset for this study and therefore available to extract info. It may have been prior to his retirement - but if he is not doing it - who is?
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    Reports from participants in GET and CBT trials

    https://www.hra.nhs.uk/planning-and-improving-research/application-summaries/research-summaries/pace-10-year-follow-up-feasibility-study/
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    Reports from participants in GET and CBT trials

    I could be going completely barmy today, so apologies in advance, but is there not a study/ initiative tracing PACE trial participants currently ? I have a faint memory of something mentioned last year.
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    UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

    So how does their fire safety work?
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    Waking up in the night and hearing a brain-generated sound

    Tinnitus, and Menier' s disease have been linked to insulin resistance, so low carb could explain why it disappeared for you.
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    Steven Lubet: Trial by Error: Professor Sharpe's intemperate remarks for whom is he speaking?

    Bad things happen when good people do nothing - something to that effect. ...
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    An exploratory study into chronic fatigue syndrome/myalgic encephalomyelitis and fibromyalgia

    i have got a copy of this now .PM if of interest
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    Updates on status of ICD-11 and changes to other classification and terminology systems

    Thank you @Dx Revision Watch for your ongoing vigilence and attention to detail.
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    An exploratory study into chronic fatigue syndrome/myalgic encephalomyelitis and fibromyalgia

    remember this is the land of Dr Pelosi...
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    An exploratory study into chronic fatigue syndrome/myalgic encephalomyelitis and fibromyalgia

    I have just asked my son's girlfriend ( about to graduate from UWS) if she can save a PDF copy - will let you know
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    The ME Show

    Thank you Gary & Greg This is a completely different world that few can comprehend - thanks for shining a wee bit of light.
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    Video: The PACE trial: a short explanation, Graham McPhee

    @Action for M.E. This perhaps illustrates the main issue and explains why CBT and GET don' t work.
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    Psychiatry – the medical speciality that combines empathy and science

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    PACE style CBT for CFS/ME - should it be scrapped?

    The single paid specialist in Scotland is a specialist nurse. Currently nominated for a national nursing award.
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    PACE style CBT for CFS/ME - should it be scrapped?

    I suspect that' s why it was not mentioned. CBT is the universal panacea that lets boxes be ticked.
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    NICE looking for lay members to join the ME/ CFS guideline committee, 2018

    Yes, that makes sense , but there must be other ways of achieving this. If you had to have a single centre why London- why not somewhere geographically more central?
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    NICE looking for lay members to join the ME/ CFS guideline committee, 2018

    Why London? Why not multicentred to enable wider input ? Whilst there may have been some thought re patient engagement this is not coming over. If you want meaningful engagement, with a group that will have their health impacted through travel, then skype participation seems a no brainer, but...
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    Michael Sharpe skewered by @JohntheJack on Twitter

    know
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    UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

    That is exactly the modus operandi of the current government full stop
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    UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

    I think he must breathe through his ears
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