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One for @adambeyoncelowe @Keela Too and @Jonathan Edwards to bring to the NICE table?

Thank you

We have never had any ( of either)

Kafkaesque

How does it work if there are no clinics, nor specialists?

Thanks for the clarification @Simon M . I have a feeling in our case that epigenetic expression helped create the conditions for a trigger to tip things over. I could be very wrong. So not causal but a facilitator. This seems a study that needs to be done. The difficulty, given history, may...

Thanks for correction. Great for advocacy- just need to keep the momentum going!

Alive and well here. Recently listened to a educational psychologist enthusiastically espouse ACEs training in schools and CBT for autistic children....no robust evidence base for any of it.

From tweet this morning - I don't t know if any rely on support services funded by EU, or have care issues due to staff relocating, but perhaps a discussion re potential impacts may help planning/ solutions to a void further crisis?

One of articles accessible via tweet

Seems some of the SMILE issues are not unusual

All those ley lines.....

I can't t help feeling it will be GWI and not CFS that will be his undoing. GWI at least gets US research funding and Sir Simon' s stance on this is well documented When the arguments start rolling back on it the end game may be playing out.

How many other bio banks/ DNA sampling data is there worldwide? A coordinated, standardised format may be able to glean existing data . Both omf and klimas have requested and received genetic data. Could some who have forwarded this previously be interviewed ( Skype?) / complete a...

Re the Karl Morten ATP profiles test replication ( which showed no significant difference on fresh blood) - has anyone looked into why there is such a big difference between controls and pwme after 24 hours ( would that not give a clue as to something awry?)

Th2 shift has also been suggested for extended fight or flight mode . In anticipation of an oncoming battle your body anticipates wounds and bacteria . In mice it seems this prolonged response triggers epigeneric changes ( now a new normal) some of which are heritable. I looked at this years...

The common feature of throat/ underarm lymph glands being swollen and problematic in PEM has been discussed. Given there are lymphs in multiple other places, could these account for other symptoms, eg at head/ neck contributing to increased pain: in lungs perhaps to air hunger: in brain...

This