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Make sure you tell us how you get on. There's a whole family here that would be interested.

The problem with all of these analogies is that they suggest a central store of energy, whereas in reality much of the energy problem happens at a cellular level. I find changing the type of activity much more productive than "using up my spoons" on one, so, for me, a spell on the computer, a...

I know the figure of 250,000 is the one popularly touted about, but I'm not confident that it is a fair number. The study, whose name I forget and that looked at 4 GP surgeries in different parts of the country, came up with data that suggested the total would be around half of that. Looking at...

I don't think you would, @Sean, not because you are such an amazing person, which of course you must be as a member of s4me, but because, like most of the people here, you have a need for accuracy and evidence. It is the refusal of the psychs to see that the evidence either doesn't support them...

That's both so honest of you @Allele, and so understandable. When my son went down with ME in 1989, I knew he was really ill - I never doubted him at all. A healthy 8-year old doesn't lie around ill on the settee with headaches etc all through the summer holidays! But even then, I never...

Sadly it is also common with the Lightning process I gather. Someone who was on a forum many years back was "cured" by LP, and so broke contact with the group. I heard from her now and then, and on one occasion she was complaining about going out for a meal with friends, but they went for a...

It's a very heavy piece of work for an average person to read: the structure and style are aimed squarely at the well-educated and linguistically fluent. I honestly couldn't recommend it as a general primer. In my experience (as a teacher), I find that most intelligent people have very little...

Yes, particularly when the light level lessens. I am particularly vision-balanced - put me in a 360º cinema and I fall over when the film moves round a corner (and that was before ME). I take our dog out for a walk each evening (he loves to chase the scent of foxes and cats), and wobble all over...

Does anyone have any insights into a problem with protein digestion? A friend has been getting overwhelming panic attacks and muscle cramps for some time now, which do respond to a certain extent to Beta-blockers or benzo. This friend accidentally found out that reducing protein intake reduced...

Thank you @Barry and @Cheshire . Did you work out that I was "encouraged" to rewrite the summary? The language is far from my own, and much more tactful. Other than that, I did have a lot of support and help from others here: well, you can guess that of course! What bugs me is that homeopathy...

That would be great, @MEMarge Karen reminded me of when I was younger: ah the sad old passage of time slows us all down. I often say to people that Ian had ME ten years before me, and I knew he was a genuine case. He's bright and articulate, so I really thought I understood how bad it was...

Hi @Binkie4 and @MEMarge I'm glad you both made it, and I'm sorry we didn't get much of a chance to chat. Strange how you recognised me so easily. Was it the glasses? Was it the accent? Or was it the gleaming, radiating red and shiny dome? I must admit I was running on fumes, so if I was a...

I'm often asked why there is so little research into ME, and I say I have five main reasons. One of the big ones is that the illness mainly affects women, and the medical profession has a terrible history of ignoring women's pain and symptoms. Some people think that with more women in the...

I take it back. That was two weeks ago, and the deadline for free tickets passed. We have now sold all 100 tickets, and Lisa has just had a phone call from a lady asking for 4 tickets, including for a local GP interested in ME. Aaaaarrrrgggghhhh!!!!!

I agree about us not needing more funding for the psychs, but, to be fair, when MPs did get involved with an Early Day Motion back in 2010 it was to push the MRC into funding biomedical research. OK, it was the third attempt by parliament to get things moving, and the MRC only responded in 2011...

We wrote to all the local surgeries and hospitals offering a couple of free tickets each to our screening. Not one taker. So disappointing and frustrating. If I ever find one who is interested, I'll tell them all about it.

We invited our MP to our screening of Unrest: we haven't even had a reply yet.

I have a copy, but I'm not sure that it is posted anywhere. It doesn't contain anything particularly useful: it's more likely just to increase our frustrations and irritation. But if anyone wants to see it, and if they can send me evidence that their blood pressure is reasonable and that their...

I'll be there. In fact I'll be doing the "thank you to sponsors" at the start (extremely short) and the "cafe is open, people are around to chat, Q&A in the hall, collecting tub for IiME in the cafe" reminder afterwards. Be good to see you there! Just look for a head that reflects a lot of light.

I haven't developed any problems with my eyesight over most of my 18/19 years with ME, until very recently (apart from the usual deterioration that comes with growing old, but actually benefits people who are short-sighted). But then, my testosterone has dropped a lot. So until I get that...