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Ah, now that statement could cause a vast amount of comment. In brief, CBT and GET persuaded patients to tick boxes in questionnaires saying that they were not as bad as they said originally, but any real test (walking, climbing stairs, return to work) showed no change. As is usual in such...

It would have been a problem if the study had actually found that CBT or GET was effective for some patients. But as the study found that nothing worked, that should have been the end of it. The study cannot make any recommendations about CBT or GET (or at least it shouldn't have), so it is...

I'd say that the majority of referrals that I come across are due to the GPs misguided belief that these centres offer worthwhile treatments.

I thought Klingons were factional.

Once again, a collection of generalized statements and a repeat that "the big boys told us we could do it sir!" I have yet to see a proper explanation of how scores of 65 or less on the sf-36 at the start of the trial selected those patients diagnosed with CFS who were more badly affected, but...

I've written to them, and will update you.

Always late to the party! They don't seem to have a particular date, but vary from year to year. Perhaps it would be an idea for me to discuss it with them.

I have been thinking about the Tribunal ruling and the release of PACE data. Recently, in the UK, MPs have been debating ME, and the analysis by Caroline Wilshire et al, and the various articles in the little green book, have underlined what is possible when key data is available. More recently...

Always happy to help, @Michiel Tack , but I'm more content focused than a writer: most of my attempts get lots of editing suggestions. I have the tact of a charging rhino. The easiest way to do this is to start up a "conversation" with those who offer to help, then post back on this thread...

Not recently: I'll get in touch.

Piggy-back For ME? I don't see that taking off.

I forgot to point out that it is called "Walk For ME", which puts the emphasis in the proper place.

What can I add? You have said it all, clearly and eloquently. I really don't think that people in general fully appreciate the nightmare that applying for benefits is for people with ME. I'm in the same position as Trish: I dread to think what will happen to my son when we are no longer able to...

Yes, my son, and two friends have been running it for several years now. It tends to get communities of relatives and friends of local ME folk involved, and has raised around £125,000 so far.

Have you seen this interesting article in The Conversation? Particularly of interest is the disproportionate effect that non-live vaccines have on girls...

I like the thought of replying "OMG, I hadn't thought of that: thank you so much!" to inane advice. But they know me well enough to feel the sarcasm ladled all over it.

I dropped a note to Jane Colby, saying that you had discovered it.

From my reading of the Chalder Fatigue Scale results from my own survey, the FINE data and the PACE data, I think that is a particular problem with questions that ask for degrees of difficulty. People can be convinced or feel obliged to regrade their difficulty with, say, walking, from very bad...

I appreciate what Jon and Trish say, but, stepping back, there is an enormous gulf between what I used to do and what I do now. I'm talking of a questionnaire that measures that gulf. I'm not a fan of questionnaires in general, and I used to try to get my students to be very restrictive and...

But in reality, for many of these studies the complexities of analysing data from fitness monitors etc., or the complexities of arranging objective tests is too much. An ideal route would be a basic questionnaire asking concrete yes/no questions, and a simple computer-controlled cognitive test -...