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  1. Sly Saint

    Effects of Neurological Disorders on Bone Health - Kelly et al 2020

    https://www.frontiersin.org/articles/10.3389/fpsyg.2020.612366/full
  2. Sly Saint

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    #MEAction Goodbye to graded exercise therapy but concerns about physical activity programmes – Community Discussion https://www.meaction.net/2020/11/30/goodbye-to-graded-exercise-therapy-but-concerns-about-physical-activity-programmes-community-discussion/
  3. Sly Saint

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    British Thoracic Society PHOSP-COVID Webinar https://www.brit-thoracic.org.uk/research-and-innovation/phosp-covid/ registration required to view.
  4. Sly Saint

    The Lonely, Isolating, and Alienating Implications of ME/CFS. Boulazreg & Rokach. 2020

    "Kinesiophobia is the most extreme form of fear of movement, and is defined as an excessive, irrational and debilitating fear of physical movement and activity resulting from a feeling of vulnerability to painful injury or reinjury, and it has been reported as a common feature of patients with...
  5. Sly Saint

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    " In fact, viral-like illnesses appear to precede ME/ CFS onset in approximately 50% of patients [15]." https://www.researchgate.net/publication/328013919_Chronic_viral_infections_in_myalgic_encephalomyelitischronic_fatigue_syndrome_MECFS
  6. Sly Saint

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Signs You've Already Had COVID, Says Dr. Fauci https://www.eatthis.com/signs-post-covid-fauci/
  7. Sly Saint

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Long Haulers: The Continuing Casualties of COVID-19 https://www.emsworld.com/article/1225291/long-haulers-continuing-casualties-covid-19
  8. Sly Saint

    A personal letter to the NIH team researching ME/CFS about their PEM study, 2020

    I like this term, might be better instead of envelope in guidelines(?) "the magnitude or intensity that must be exceeded for a certain reaction, phenomenon, result, or condition to occur or be manifested." "the level at which one starts to feel or react to something."
  9. Sly Saint

    How NICE is improving patient safety Annual patient safety update covers the period from September 2019 to September 2020

    Not sure if this has been posted elsewhere; How NICE is improving patient safety Annual patient safety update covers the period from September 2019 to September 2020 25 November 2020 Professor Kevin Harris, NICE's senior responsible officer for patient safety...
  10. Sly Saint

    Assessment of Fatigue Using Wearable Sensors: A Pilot Study - 2020 Luo et al

    full text: https://www.karger.com/Article/FullText/512166
  11. Sly Saint

    Post-Exertional Malaise - a discussion including defining and measuring PEM

    Post Exertional Malaise Timecourse in ME from the Workwell Foundation https://workwellfoundation.org/wp-content/uploads/2020/03/WW-PEM-Timecourse.pdf
  12. Sly Saint

    Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, and Chronic Fatigue: Three Distinct Entities Requiring Complete Different Approaches (2019) Twisk

    Letter to the Editor ME (Ramsay) and ME-International Case Criteria (ME-ICC): two distinct clinical entities F. Twisk full letter https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-020-02617-0
  13. Sly Saint

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    HSJ podcast: Long-COVID care cannot be delayed any longer (19 November 2020) Posted by PatientSafetyLearning Team https://www.pslhub.org/learn/coronavirus-covid19/patient-recovery/hsj-podcast-long-covid-care-cannot-be-delayed-any-longer-19-november-2020-r3599/?tab=comments#comment-288
  14. Sly Saint

    Medicine Journal : Chronic fatigue syndrome - Stephen Perry 2020

    https://www.medicinejournal.co.uk/article/S1357-3039(20)30229-2/pdf https://scihubtw.tw/10.1016/j.mpmed.2020.09.007 Psychiatric aspects of general medicine| Volume 48, ISSUE 12, P765-768, December 01, 2020 fish and chips paper.
  15. Sly Saint

    'Medically unexplained symptoms' (MUS, PPS, SSD) : Time for NICE to review the 'evidence'?

    that still includes us eta: ie ME/CFS is included and 'treated' as MUS
  16. Sly Saint

    "No More Mr NICE Guy…" by Prof. Brian Hughes

    happened back in september https://www.s4me.info/threads/hi-im-brian-hughes.5526/page-7#post-289685
  17. Sly Saint

    BACME: Position Paper on the management of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS), Oct 2020

    also very dangerous, as many newly diagnosed patients are directed by the NHS to read this book.
  18. Sly Saint

    Open Medicine Foundation (OMF)

    Thread about the book here: https://www.s4me.info/threads/the-puzzle-solver-by-tracie-white.18530/
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