Search results

Does anyone have any insights into a problem with protein digestion? A friend has been getting overwhelming panic attacks and muscle cramps for some time now, which do respond to a certain extent to Beta-blockers or benzo. This friend accidentally found out that reducing protein intake reduced...

Thank you @Barry and @Cheshire . Did you work out that I was "encouraged" to rewrite the summary? The language is far from my own, and much more tactful. Other than that, I did have a lot of support and help from others here: well, you can guess that of course! What bugs me is that homeopathy...

That would be great, @MEMarge Karen reminded me of when I was younger: ah the sad old passage of time slows us all down. I often say to people that Ian had ME ten years before me, and I knew he was a genuine case. He's bright and articulate, so I really thought I understood how bad it was...

Hi @Binkie4 and @MEMarge I'm glad you both made it, and I'm sorry we didn't get much of a chance to chat. Strange how you recognised me so easily. Was it the glasses? Was it the accent? Or was it the gleaming, radiating red and shiny dome? I must admit I was running on fumes, so if I was a...

I'm often asked why there is so little research into ME, and I say I have five main reasons. One of the big ones is that the illness mainly affects women, and the medical profession has a terrible history of ignoring women's pain and symptoms. Some people think that with more women in the...

I take it back. That was two weeks ago, and the deadline for free tickets passed. We have now sold all 100 tickets, and Lisa has just had a phone call from a lady asking for 4 tickets, including for a local GP interested in ME. Aaaaarrrrgggghhhh!!!!!

I agree about us not needing more funding for the psychs, but, to be fair, when MPs did get involved with an Early Day Motion back in 2010 it was to push the MRC into funding biomedical research. OK, it was the third attempt by parliament to get things moving, and the MRC only responded in 2011...

We wrote to all the local surgeries and hospitals offering a couple of free tickets each to our screening. Not one taker. So disappointing and frustrating. If I ever find one who is interested, I'll tell them all about it.

We invited our MP to our screening of Unrest: we haven't even had a reply yet.

I have a copy, but I'm not sure that it is posted anywhere. It doesn't contain anything particularly useful: it's more likely just to increase our frustrations and irritation. But if anyone wants to see it, and if they can send me evidence that their blood pressure is reasonable and that their...

I'll be there. In fact I'll be doing the "thank you to sponsors" at the start (extremely short) and the "cafe is open, people are around to chat, Q&A in the hall, collecting tub for IiME in the cafe" reminder afterwards. Be good to see you there! Just look for a head that reflects a lot of light.

I haven't developed any problems with my eyesight over most of my 18/19 years with ME, until very recently (apart from the usual deterioration that comes with growing old, but actually benefits people who are short-sighted). But then, my testosterone has dropped a lot. So until I get that...

My wife had a couple of these a while back, and they gave her a lot of trouble/infection/inflammation. Eventually she had to have them removed. The dentist at the time was a highly respected and caring one, and he said that he had been reading up a lot about them as a result of her troubles, and...

I am, @Wonko , a mere mortal when it comes to the mysteries of modern technology. I was there when we strung out pebbles outside the cave to send a message in binary to friends from the other side of the valley. I was there when computers made of valves came in and solved the problem of cold...

Does this mean that I've only got a few weeks left before it happens to me?

Temporary downtime on your server: so I'll have some temporary downtime and come back later!

Actually there was an interview with Jennifer Brae on BBC South-East News earlier in the week (along with another lass from the south-east), so that's good. But we didn't manage to get a plug for the Crowborough showing!

Yes, my son get sore throats when he is in a worse patch. I think though that the sort of cough I am talking about is very different from a sore throat. Mine is very much a sudden, reactive and sometimes quite violent cough that can be over in ten minutes or a bit more. The sore throat symptom...

Yes, I have a cough that can really be bad: I can end up on my knees gasping for breath. That long predates the ME, and could sometimes be quite a pain while teaching. There are a number of recognised triggers - mould, detergents, dry soil, some strong perfumes - but oddly enough "chemicals"...

Both my son and I have tried various exclusion diets over the many years, but nothing has been effective. We do eat healthily, in the general sense. Giving up chocolate was probably the most heart-breaking (don't get the wrong idea though - we only eat a square of the really dark chocolate each...