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  1. Dx Revision Watch

    Memory problems

    There's another one where for one of the tasks, the person being tested is asked to draw a clock face, put the numbers on and then draw the hands on at a particular time. Also name as many animals as you can being with "F" or some other letter. Or count backwards from 100 in "serial sevens". And...
  2. Dx Revision Watch

    Memory problems

    Mini-Mental State Exam (MMSE) Questions from page 4: https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/GetPdf.cgi?id=phd001525.1 also: https://www.bgs.org.uk/sites/default/files/content/attachment/2018-07-05/mini-mental_state_exam.pdf
  3. Dx Revision Watch

    Updates on status of ICD-11 and changes to other classification and terminology systems

    The proposal above has been edited to include the following: Rationale This submission represents the consensus of the IASP Task Force Classification of Chronic Pain (Chairmen: Rolf-Detlef Treede and Winfried Rief). References [1] Wolfe F, Clauw DJ, Fitzcharles MA, Goldenberg DL, Hauser W...
  4. Dx Revision Watch

    Updates on status of ICD-11 and changes to other classification and terminology systems

    Hi Esther12, I'm not a stakeholder in, nor an advocate for Fibromyalgia. I cannot say to what extent these proposed changes, submitted today, reflect international consensus criteria, or whether Fibromyalgia advocacy groups are comfortable with consensus criteria for Fibromyalgia, or would be...
  5. Dx Revision Watch

    Updates on status of ICD-11 and changes to other classification and terminology systems

    ICD-11 Fibromyalgia: a new proposal for a Change of Title, Change of Definition was submitted on June 26, 2019, via the ICD-11 Proposal Mechanism. For ICD-11, Fibromyalgia has not been assigned a unique code. In May 2015, it was relocated from its legacy ICD-10 chapter location to a new...
  6. Dx Revision Watch

    Forward-ME Group Minutes - 8th May 2019

    I cannot confirm whether Christine Harrison has indicated any alternative channel for submitting feedback. But she is a member of Forward-ME in the capacity of BRAME and in the absence of provision of any other means of submitting feedback, I think it would be reasonable to contact BRAME.
  7. Dx Revision Watch

    Forward-ME Group Minutes - 8th May 2019

    Christine's BRAME org webpage: http://www.brame.org http://www.brame.org/contact.html
  8. Dx Revision Watch

    Forward-ME Group Minutes - 8th May 2019

    NB: Pervasive refusal syndrome is more recently referred to as Pervasive Arousal Withdrawal Syndrome (PAWS). Neither term has been included in ICD-11. https://www.ncbi.nlm.nih.gov/pubmed/21733931 Clin Child Psychol Psychiatry. 2012 Apr;17(2):221-8. doi: 10.1177/1359104511403680. Epub 2011 Jul...
  9. Dx Revision Watch

    Forward-ME Group Minutes - 8th May 2019

    Or severe "deconditioning"?
  10. Dx Revision Watch

    Forward-ME Group Minutes - 8th May 2019

    Pervasive refusal shite, probably.
  11. Dx Revision Watch

    Forward-ME Group Minutes - 8th May 2019

    I find the summaries of Minutes for Forward-ME meetings are often ambiguously written. These Minutes will have been circulated to members for approval. Why does no-one pick up on ambiguities? or should it have been (which I think is more likely)? 4.6 Dr Charles Shepherd drew attention to a...
  12. Dx Revision Watch

    UTI test often fails to detect infection, say researchers

    At the risk of becoming an ICD-11 bore...for anyone interested in how Interstitial cystitis is described in ICD-11: https://icd.who.int/dev11/l-m/en#/http://id.who.int/icd/entity/1650709285 GC00.3 Interstitial cystitis Parents: 16 Diseases of the genitourinary system > Diseases of the...
  13. Dx Revision Watch

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Page 33 https://www.cdc.gov/nchs/data/icd/Topic-packet-Sept-2018.pdf ICD-10-CM Coordination and Maintenance Committee Meeting September 11-12, 2018 Topic Packet One: Ehlers-Danlos Syndromes (EDS) A proposal to create thirteen new codes for Ehlers-Danlos Syndrome (EDS) was presented at the...
  14. Dx Revision Watch

    ME is not a functional disorder: ME Association 13,000+ petition sent to NICE

    (Click on ME Association's response for other responses from ME Association in this thread.)
  15. Dx Revision Watch

    ME is not a functional disorder: ME Association 13,000+ petition sent to NICE

    Agree. The article states, and the young lady is reported as saying that she has "chronic fatigue" - not "chronic fatigue syndrome."
  16. Dx Revision Watch

    The ME Patient Foundation

    I had a word with Claudia, yesterday. This nascent organization is preparing to officially launch very shortly. There is a list of Objectives: https://themepatientfoundation.org/charity-objectives/
  17. Dx Revision Watch

    The ME Patient Foundation

    Charity Objectives: https://themepatientfoundation.org/charity-objectives/ Ethics: https://themepatientfoundation.org/values/
  18. Dx Revision Watch

    The ME Patient Foundation

    In addition to the website and Facebook page there is also an associated, but not yet active Twitter account: https://twitter.com/mepfuk That's an easy Twitter handle to remember - mepfuk
  19. Dx Revision Watch

    The ME Patient Foundation

    Claudia has authored papers for the Centre for Welfare Reform https://www.centreforwelfarereform.org/about-us/centre-fellows/dr-claudia-gillberg.html
  20. Dx Revision Watch

    The ME Patient Foundation

    Claudia and Geoff are on Twitter, as well as the https://uttingwolffspouts.com/ blog. They are good people.
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