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Direct link to ME Awareness Week page: https://measussex.org.uk/me-awareness-week-may-10-to-16th/

Very good points I think, Barry.

Coyne likes to quote this study. Active Albuterol or Placebo, Sham Acupuncture, or No Intervention in Asthma https://www.nejm.org/doi/full/10.1056/nejmoa1103319

And in fact they showed this in the SMILE trial. They used the same flawed trial design as they had for PACE to test outright woo and found it too had the same effect: it didn't change the underlying illness but succeeded in persuading a small number of patients to say that they felt a bit better.

Thanks for the responses. I finally got a thread written on Twitter to send him and his account has been deleted. Did he get a bit of a pounding on there after the article?

They should provide this on request. They should also automatically treat such a request under the FOI. If you have no luck @PhysiosforME post back and let us know what they say.

Column (paywalled) by James Marriott in The Times. https://www.thetimes.co.uk/article/lets-end-the-stigma-of-psychosomatic-illness-whfdlwhph Anyone know whether that 'a third of outpatients...' is right? Or where it's from? @dave30th perhaps? I think the article shows what we're up against...

By all means you may, at least as far as I am concerned. I was merely pointing out that your 'paper' had not passed peer-review and had not been published and was based on and refers to another such 'paper', and unless and until they do and are, then they have no standing as academic research...

I make no such claims. You present your work in the form of an academic paper. You upload it to a repository for papers prior to publication. You refer to your previous work on which this is based as if it had the authority of a paper. You refer to it as your 'latest' paper. And you have...

I think it is rather stretching it to refer to this as a 'paper'. It has not been peer-reviewed and in its current form, I doubt very much it could be published. I note also that it refers to another unpublished 'paper' by the same author, one which presumably has also not been peer-reviewed...

Maybe someone we know could do an inquiry and determine that it is psychological trauma. https://www.theguardian.com/world/2021/mar/30/mystery-brain-disorder-baffles-canadian-medicine

Interesting blog on brain fog It doesn't mention ME, but we follow each other on Twitter and he included ME in his research. https://real-psychiatry.blogspot.com/2021/03/brain-fog.html?spref=tw

Thanks, Jo. It's been a tough 12 months, but I am slowly improving and am just dipping my toe in here and reading a few posts. I'll not be active for a while. Thanks all for the good wishes. (And please no replies or I'll get into trouble with the other mods for hijacking a thread. Hehe.)

It is strange that the follow-up results have not been published. Yes, I'll ask for the data when I'm up and running again. Or walking at least. Hehe.

Thanks, Jem.

Thanks, Trish.

Thanks, Rob. Damn I hate it when I make a typo. And I make plenty of them.

Cronies. From https://www.ucl.ac.uk/mental-health/people/professor-rob-howard

Hehe. A masterpiece.

Apart from the obvious question as to why Action for ME were involved in this nonsense, the other thing that occurs to me is that it is not greatly dissimilar to, and perhaps influenced by, the Lightning Process.