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I'd be curious to see how that might work out for you. :rolleyes:

Well, although not a direct test, an IgM positive WB within 30 days or so of a tick bite would be highly suggestive of an active early disseminated Lyme infection . Later, a positive WB IgG could just represent an old infection. Conversely, it could be a clear signal you're in the grips of an...

Disequilibrium and/or ataxia a cause of OI...? Wouldn't "component" be more apt?

I am a little puzzled by this observation. First, the wording throws me a bit. Are you saying ME is not due to a problem with the muscles? Second, are you suggesting channelopathies always render problems with deep tendon reflexes? I ask because I don't think we can confidently claim either is...

Strange variations in California, especially with babesia, but CA is a documented hotspot for Lyme and Company. Why any doctor would minimize...well, it's that way all over, I suppose. Edit to add: Ahhh, he wasn't minimizing the idea of a TBD, he was shrugging off the idea of a chronic one...

I test positive for Bartonella antibodies, and I get rashes on and off - but I cannot say for sure if they are from Bartonella. What I can say is that they are not true scratches - they are more like enlongated thin rug burns. The (maybe) weird thing is that I have found they seemed to be...

Clinicians. :) None of them knows noth'n. They help legitimize us, yes, and that is huge and amounts to a debt we can likely never repay. But, they don't know much. Even the ones that do often parrot shit like PACE or variations of it. Personally, I'd pick some patients over even the best...

So, teachable moments with peers, yes?

Floroquinolines and such... I think this is a good warning per se, but I am not sure how the proclamation against antibiotics in general plays in. I am not sure how I feel about them, and I am on a shit-load. I do know where I am from many of us hold edicts with distrust only surpassed by our...

Reading this, I could not help but wonder if the new IDSA Lyme Guidelines were due out soon or something... How is a doctor from Idaho qualified to speak with any perspective of meaningful, hands-on experience of Lyme disease? Shouldn't they practice in an endemic area? How did she not realize...

All of which, I suspect, is incidental to what Wormser is trying to do - which I imagine includes saving foolish patients who only think they are sick, when in reality they are just experiencing commonplace aches and pains. Fortunate for us that he has evidence-based medicine on his side to...

"However, chronic fatigue syndrome and medically unexplained subjective symptoms are now increasingly referred to as Lyme disease..." I doubt this is as prevalent as he might be implying. Most doctors I know use variations of the CDC's silly 2T or the C6. They dutifully check serology. This is...

I'm not sure what this means. Lyme disease is an infection of Bb - period. I think there are many Lyme patients, myself included, that would prefer a diagnosis of Borrelia. This is not too different from many ME/CFS patients wishing their diagnosis was simply ME. Regardless, with at least one...

Notice the MUS reference. There is a federal Lyme working group that has been convening for the past few months. As I understand it, this individual was appointed to it, and the patient outcry against his mere presence was swift and loud. He withdrew from the Lyme working group.

Hmmm, me, too. Macrocytic anemia. Low platelets as well. Interesting that you also had vestibular issues.

I believe there is an MS school of thought that holds infectious diseases may be at play - and in fact that school is growing - but perhaps not.

Or Falsely. I think "falsely" connotes something a little more sinister and deliberate...

I cannot speak to whether bias is inevitable in RCTs, but I believe it does happen and is easy to do. All one has to do is manipulate or define a single variable that determines outcome. Three famous (notorious?) RCTs helped decide what abx therapy is appropriate for Lyme going on close to two...

"NIH representatives have presented at many ME/CFS-related conferences and meetings, including the annual Sleep Conference in 2017." :cautious:

No, I wouldn't, and I've experience with government medical sleuths. The concept of persistent infection doesn't seem popular in Bethesda or Atlanta. I have seen the CDC deny a pathogen as it slowly killed a patient, even though they were in receipt of her plasma and tissue and CSF, and those...